Coeliac disease FAQs

  • I have just been diagnosed with coeliac disease, how can I join Coeliac UK?

    Coeliac UK gives you up to date information and support about your diet and health and as a Member you will also have access to a range of exclusive services.

    You can join online or contact us on 0845 305 2060.

    On receipt of your application we will send you your Welcome Pack which will include a diet and health information booklet, a quick reference gluten-freeWhen a food has less than 20 parts per million (ppm) of gluten so it is safe for people with coeliac disease to eat. check list, and our Food and Drink DirectoryCoeliac UK’s key source of information listing thousands of foods that can be included in a gluten-free diet. .

  • What is coeliac disease and dermatitis herpetiformis?

    Coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. is an autoimmuneA reaction to a trigger which causes the body to attack itself. disease, which means that the body produces antibodiesExist in the blood and are used by the immune system to attack viruses or bacteria. that attack its own tissues. This disease is triggered by glutenA protein that is found in the cereals wheat, barley and rye. , a protein found in wheat, barley and rye. Some people with coeliac disease are also sensitive to oats. Dermatitis herpetiformisUsually shortened to DH, this is a form of coeliac disease where the skin is affected with small blisters. is a skin rash found in coeliac disease. Read more about coeliac disease on our main site.

  • Is coeliac disease the same as an allergy to wheat?

    Coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. is not the same as an allergy to wheat. Coeliac disease is an autoimmuneA reaction to a trigger which causes the body to attack itself. disease, which means that the body produces antibodiesExist in the blood and are used by the immune system to attack viruses or bacteria. that attack its own tissues. For people with coeliac disease this attack is triggered by glutenA protein that is found in the cereals wheat, barley and rye. , a protein found in wheat, rye and barley. Some people with coeliac disease are also sensitive to oats. Our sections on coeliac disease and the gluten-freeWhen a food has less than 20 parts per million (ppm) of gluten so it is safe for people with coeliac disease to eat. diet and lifestyle include a lot of information which you may find useful.

  • What happens if someone with coeliac disease eats gluten by mistake?

    The effect of eating glutenA protein that is found in the cereals wheat, barley and rye. varies from person to person and may last from a few hours to a few days. Symptoms of eating gluten, or being ‘glutened’, include headaches, diarrhoea, stomach pains and lethargy. Ongoing gluten ingestion results in continued malabsorption and associated nutritional deficiencies. Long term problems may include osteoporosisA condition where your bones lose bone mass and become brittle. , infertility problems and small bowel cancer.

    The reaction is not the same as an allergic reaction and does not cause anaphylactic shock.

  • How can I find out what foods I can eat?

    We publish an annual Food and Drink DirectoryCoeliac UK’s key source of information listing thousands of foods that can be included in a gluten-free diet. which lists thousands of foods you can eat, and a gluten-freeWhen a food has less than 20 parts per million (ppm) of gluten so it is safe for people with coeliac disease to eat. checklist which are free to Members. You can order publications from our online shop.

  • Can you recommend a coeliac disease specialist consultant for me to see?

    Although we cannot recommend a specific consultant, we suggest visiting the Dr Foster Health website which maintains a comprehensive directory of consultants by specialty and geographic area.

  • What are the symptoms of coeliac disease?

    The symptoms of coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. vary from person to person and can range from very mild to severe. Common symptoms include diarrhoea, excessive wind, constipation, nausea and vomiting, stomach pain, anaemia, tiredness, headaches, weight loss (but not in all cases) and mouth ulcers. Read more about the symptoms.

  • What are the symptoms in babies?

    In babies, symptoms may develop after weaning onto cereals that contain glutenA protein that is found in the cereals wheat, barley and rye. . Symptoms in babies include muscle wasting in the arms and legs, bloated tummy, irritability and failure to gain weight or lose weight after previously growing well.

  • How long do I have to eat gluten before being tested?

    It is recommended that you eat some glutenA protein that is found in the cereals wheat, barley and rye. at least one meal every day for at least six weeks before testing.

  • How common is coeliac disease?

    It is thought that 1 in 100 people in the UK have coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. but a lot of people are not actually diagnosed.

  • Is there any advice for people with coeliac disease who are pregnant?

    Pregnancy holds no greater risks for women diagnosed with coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. than those without, but it is important you follow a strict gluten-freeWhen a food has less than 20 parts per million (ppm) of gluten so it is safe for people with coeliac disease to eat. diet and make sure you get a good intake of calcium and iron.

  • What is osteoporosis?

    OsteoporosisA condition where your bones lose bone mass and become brittle. is a condition where the body's bones become brittle and are more likely to break. Read more about osteoporosis.

  • I have coeliac disease, when should I wean my baby?

    Children who have an increased risk of coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. should still be weaned in the same way as any other child. Read more about weaning.

  • What are the tests for coeliac disease?

    The first test for coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. is a blood testBlood is taken from someone who is being tested for coeliac disease. done by your GPGeneral Practitioner, or local doctor that looks for antibodiesExist in the blood and are used by the immune system to attack viruses or bacteria. that the body makes in response to eating glutenA protein that is found in the cereals wheat, barley and rye. .

    The most accurate blood tests for coeliac disease are: tissue transglutaminase antibody (shortened to 'tTGA') and endomysial antibody (shortened to 'EMAEndomysial antibody - an antibody that is measured in the blood as part of the diagnosis process for coeliac disease. Depending on the laboratory performing the test, one or more antibodies may be measured (see Tissue Transglutaminase)'). If the blood test is positive, your GP will then refer you to a hospital specialist (gastroenterologistA doctor who specialises in the digestive system. ) for an endoscopyAn investigation that looks inside your gut. The endoscope is a thin flexible tube that you swallow. It has a light and a camera and is passed via the mouth and into the upper part of the gut that is affected in coeliac disease. with biopsyA small sample of tissue is taken from the upper part of the lining of the gut that is affected in coeliac disease. It is then examined very closely under a microscope. A biopsy will often be taken during an endoscopy.. Read more about diagnosis.

  • If I have coeliac disease, are my children more likely to also have it?

    Coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. does run in families but not in a predictable way. Around one in ten close relatives of people with coeliac disease (for example, father, mother, son, daughter) will be at risk of coeliac disease, so if you have a relation with coeliac disease you should be aware of the symptoms. If you think that your child might have coeliac disease speak to your GPGeneral Practitioner, or local doctor about getting them tested.

  • Why do I have to be eating gluten to be tested?

    The blood tests look for antibodiesExist in the blood and are used by the immune system to attack viruses or bacteria. that your body produces when you eat glutenA protein that is found in the cereals wheat, barley and rye. so if you are not eating gluten you will not be producing antibodies and so the result will come back negative. It is recommended that you eat some gluten in more than one meal every day for at least six weeks before testing.

  • Is there a cure for coeliac disease?

    At the moment there is no cure and the treatment is a life long gluten-freeWhen a food has less than 20 parts per million (ppm) of gluten so it is safe for people with coeliac disease to eat. diet, but there is research in developing a vaccine. This research, led by Professor Bob Anderson in Melbourne, Australia, has found the parts of glutenA protein that is found in the cereals wheat, barley and rye. which make it toxic to people with coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. . The research, which is co-funded by Coeliac UK, is an important step towards finding a vaccine for coeliac disease. Developing a cure may be many, many years in development, but this recent finding is an important step towards it.

Donations

  • £10
    Could help to produce a Food and Drink Directory, detailing products that are suitable for the gluten-free diet.
  • £15
    Could help to produce 10 information packs for newly diagnosed adults and children. It could also help towards the running costs of our Helpline.
  • £20
    Could help towards the cost of raising awareness of coeliac disease and DH amongst the general public, medical profession and food industries.
  • £50
    Could help towards medical research into all aspects of coeliac disease and DH.
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