Follow-up after diagnosis

Although you may feel that you cope well on the diet and that your symptoms have gone away, it is recommended that people with coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. are seen once a year. Regular follow-up helps to ensure you are doing as well as you can on the gluten-freeWhen a food has less than 20 parts per million (ppm) of gluten so it is safe for people with coeliac disease to eat. diet. It also makes sure you are kept up to date with any new developments in managing coeliac disease.

An annual review can be carried out by your GPGeneral Practitioner, or local doctor if they have a good understanding of coeliac disease or it may be your gastroenterologistA doctor who specialises in the digestive system. or dietitianAn expert in food and nutrition. .

• Blood tests should be taken to see if your gut has healed enough to allow you to get all the nutrients you need and to make sure your antibody levels are normal.  
• If you have not had a bone scan, you should discuss this with either your GP or your gastroenterologist who will be able to refer you for a scan if they think it is necessary. Any decisions about this are dependent on the results of an initial bone scan.

If you have not had a coeliac disease check-up for a long time we suggest you contact your healthcare team to discuss this with them.