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Coeliac UK was founded in 1968 by Elizabeth Segall, wife of a doctor and mother of a child with coeliac disease, and Peter Benenson, who had the condition and well-known as a founder of Amnesty International. (Both founders sadly passed away in 2004 and 2005 respectively).
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First called The Coeliac Society.
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In 1977 the Charity had around 5,000 members.
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By 1990 this had grown to 12,000.
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In 2001 the Charity renamed itself Coeliac UK and had 49,000 members.
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In 2005 Coeliac UK announced the largest recorded grant into researching coeliac disease and dermatitis herpetiformis (DH). A total of £760k was committed to 4 projects and a clinical fellowship.
Read more here.
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In 2006, the Charity worked in partnership with a number of MPs and Peers to establish the All Party Parliamentary Group on coeliac disease and DH. The Charity won a £500k bid for a collaborative project on improving primary care diagnosis and management of the condition.
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In 2007 a Cross Party Group on coeliac disease and DH was established in the Scottish Parliament. Later in the year, the Charity succeeded in winning a £9million grant from the EU as part of a pan European collaboration to develop a new point of care diganostic tool.
