Across the UK members of the campaign network take part in the Charity’s national campaigns in an effort to improve the services for people with coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. and/or dermatitis herpetiformisUsually shortened to DH, this is a form of coeliac disease where the skin is affected with small blisters. (DH).
Campaigns focus on such issues as improving choice in local restaurants, raising awareness in local GPYour local doctor or General Practitioner. surgeries, working with catering staff at hospitals and schools, improving access to gluten-freeWhen a food has less than 20 parts per million (ppm) of gluten so it is safe for people with coeliac disease to eat. foods on prescription.
Recent research indicates that it can take up to 13 years to be diagnosed with coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself. . This is far too long. We need to work with the NHS to ensure that coeliac disease becomes a priority and those with the condition are given the treatment they deserve.
Once diagnosed, the best way to ensure good health is for patients to adhere to a strict glutenA protein that is found in the cereals wheat, barley and rye. -free diet for life. Adherence to the diet, however, is often perceived as irksome, restricting and difficult. We need to work with pharmacies and Primary Care Trusts to help improve access to gluten-free products within the health sector. We need to work with restaurants, cafes, canteens and schools to help people of all ages gain better access to gluten-free products when out and about.
Anybody can join – you don’t need any previous experience or lots of spare time to get involved in our campaigns. On joining you will be given a toolkit and supporting materials to help get you started. Throughout the year Coeliac UK will keep you up to date on the issues we are working on and provide you with easy to use materials to assist you in your efforts.
To register or for further information please email volunteering@coeliac.org.uk