The medical profession has so far, under recognised coeliac diseaseA condition where a person is unable to eat gluten as it makes their body attack itself.
. It is not routinely tested for at the moment, and we are campaigning to change this.
We would like to see coeliac disease better recognised by the medical profession so that people with symptoms of the condition are picked up more quickly and diagnosis improves. By talking to healthcare professionals about coeliac disease and the problems you face, we hope to improve the situation.
We are currently carrying out a Diagnosis Survey to help us with this campaign, as well as running a petition to ask the government to improve diagnosis of coeliac disease. We are also working with healthcare bodies to improve GPs’ knowledge of the condition.
We have already made progress with this campaign as we saw NICENational Institute for Health and Clinical Excellence - an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health. NICE had produced a clinical guideline on the recognition and assessment of coeliac disease. publish guidelines on the diagnosis of coeliac disease in May 2009. This was a direct result of a campaign we ran in 2006, and proves that whilst campaigning can be a slow process, it does work.