Many thanks to Dr Amir Khan, ITV, and Lorraine for bringing attention to coeliac disease on national TV yesterday on #InternationalCoeliacDiseaseDay. It's incredibly positive to see coeliac disease discussed on such a platform. Let's show our appreciation by sharing feedback with the show and advocating for more coeliac disease and gluten free awareness on television. Share this post with your network to help raise awareness during #CoeliacAwarenessMonth Find out more about this years campaign and if you should be tested for coeliac disease here: https://lnkd.in/ejSdX5Ry #CoeliacAwarenessMonth #Together4Coeliacs #CoeliacDisease #AutoImmuneDisease #Health #Research
Coeliac UK
Non-profit Organizations
High Wycombe, Buckinghamshire 5,934 followers
The UK’s national charity for people who need to live without gluten.
About us
For over 50 years, we have been the experts on coeliac disease and the gluten free diet. We are an independent charity helping people to live well, gluten free. We do this by providing our 65,000 plus members with trustworthy advice and support, funding critical research into coeliac disease, working with healthcare professionals to improve diagnosis and fighting for better availability of gluten free food. And we do it all so that one day, no one’s life will be limited by gluten. We have offices in England, Scotland and Wales. We are not Government funded and rely on our Members and the generosity of our fundraisers and supporters to continue our work. We want to see the needs of people with coeliac disease and DH recognised by everyone and met in their everyday lives. We do this by: - providing expert and independent information to help people manage their health and diet - campaigning on their behalf to improve access to fast diagnosis, good medical treatment and safe foods - in the home and out - researching new treatments and the possibilities of a cure. Coeliac UK staff work in diverse roles ranging from dietetic advice, campaigning to database management. To find out more about opportunities at the Charity please contact: generalenquiries@coeliac.org.uk As the gluten free diet is the only medical treatment for people with coeliac disease, we are always keen to talk to companies who are interested in producing and selling gluten free food. If you would like to discuss ways in which we could work together or if you want to find out more, please contact our Commercial Team at marketing@coeliac.org.uk who will be pleased to help.
- Website
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http://www.coeliac.org.uk
External link for Coeliac UK
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- High Wycombe, Buckinghamshire
- Type
- Nonprofit
- Founded
- 1968
- Specialties
- Gluten Free Diet, Coeliac disease, Campaigning, Support networks, Dietetics, Healthcare, Gluten Free Catering, Celiac, Gluten Free Food, Coeliac UK, Coeliac Research, Gluten , Gluten Free, and Gluten Free Accreditation
Locations
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Primary
Artisan
Hillbottom Road, Sands Industrial Estate
High Wycombe, Buckinghamshire HP12 4HJ, GB
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Regus 83 Princes Street
Edinburgh, Edinburgh EH2 2ER, GB
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Baltic House, Mount Stuart Square, Cardiff Bay
Cardiff, Cardiff CF10 5FH, GB
Employees at Coeliac UK
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Ian Severn
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Brendan Harris
Head Of Information Technology at Church of England - Parish Giving Scheme
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Ashley Bailey ACMA
Expert at developing key metrics and using financial data to shape future success in the commercial and charity sector
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Mark Bryce
Working with our Licencing and Catering Partners to ensure no one's life will be limited by gluten.
Updates
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Unlock a world of support with a Coeliac UK Membership! Join our Complete or Digital membership package starting from just £1.25 a month to enjoy exclusive benefits that empower you to live well gluten free. Your membership includes: - An introductory Welcome Pack – Living well gluten free starts here! - Access to our Live Well Gluten Free app - find gluten free products and eat out with confidence using our Venue Guide - Over 1200 gluten free recipes in our 'Home of Gluten Free Recipes' - Our bi-yearly Live Well Gluten Free magazine - Expert advice from our dietitians and support via our dedicated Helpline - Exclusive offers and discounts Become a member today and be part of a better gluten free future! Join here: https://lnkd.in/gbhu3Stq
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Coeliac UK reposted this
So proud to say I have raised £330 for Coeliac UK 🧡 Cardiff Bay 10k completed! Couldn’t have done it without you Evie Matthews 🩷
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Are you an adult living with coeliac disease? Take part in this student research opportunity and help others like you. Coeliac disease is an autoimmune condition where the body's immune system attacks its own tissues when a person eats gluten. It can have a significant impact on an individual’s quality of life and psychological wellbeing. This study will aim to explore if an online psychological workshop could be helpful for those with coeliac disease. If you're interested in taking part and you meet the criteria for the study please email i.hughes@surrey.ac.uk. #CoeliacDisease #CoeliacUK #Coeliac #CoeliacUK #GlutenFree #GlutenFreeDiet #Research
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Coeliac UK reposted this
Experienced manager with a strong background in complex governance organisations across the Charity, Public and Private Sectors.
This is a personal post in support of Coeliac Awareness Month 🌾🍽 1 in 100 people have Coeliac Disease, and it is estimated that there are around 500,000 undiagnosed people in the UK. I was diagnosed with Coeliac Disease when I was 18, in 2008, after over a decade living with unexplained symptoms. So what is #CoeliacDisease? It isn't an allergy or an intolerance, it is an autoimmune disease that causes the body to attack itself when even the smallest amount of gluten is ingested. Every time someone with Coeliac Disease eats gluten it causes intestinal damage, and just a crumb is all it takes to cause damage and symptoms lasting for weeks. Untreated Coeliac Disease can lead to ostopenia or osteoperosis, unexplained infertility, recurrent miscarriages, neurogical problems and increased risk of certain cancers. For me, undiagnosed Coeliac Disease caused severe exhaustion from being malnourished, occasionally leading to me falling asleep in school. This escalated as I got older, and I was so unwell I missed a large amount of my last year of sixth form. I began fainting, usually in the most inconvenient of places like the middle of a Remembrance Day parade! I also experienced brain fog, constant illness, frequent mouth ulcers, unexplained anemia, tooth enamel problems, thinning hair and chronic stomach pain (which was my normal for so long I thought it was normal). If any of the above sounds like you, it is important that you don't stop eating gluten before you are tested. Get online, try the #CoeliacUk self assessment and get yourself to a GP. So - is there life after gluten? 16 years after diagnosis some days are still hard, but I now have the confidence to say no to unsafe food, supportive friends and family and excellent advice and support from Coeliac UK I share a few photos below to show that eating gluten free doesn’t mean needing to eat bland!
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Coeliac UK reposted this
Today is International Coeliac Awareness Day. 🎉 We're proud to be supporting Coeliac UK's campaign for Coeliac Awareness Month this May, helping to raise awareness of the autoimmune condition that affects 1 in 100 people. Our team has been hard at work sharing powerful case studies and securing national, regional, local and trade media coverage to highlight the importance of understanding and managing coeliac disease. We were delighted to see Dr. Amir Khan on ITV's Lorraine this morning, discussing the realities of living with coeliac disease, the significance of early diagnosis and proper dietary management. Watch the Lorraine piece by clicking here: https://bit.ly/4aDuwat #CoeliacAwarenessMonth #CoeliacDisease #GlutenFree #CoeliacAwarenessMonth #InternationalCoeliacAwarenessDay #McKennaTownsend #MTPR #PR
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Coeliac UK reposted this
Personal post. May is Coeliac Awareness Month. Coeliac UK It’s 3 years and 7 months since my son Euan had his biopsies confirming the diagnosis. Euan was so poorly throughout his first 4 years he was in constant pain, major skin problems and used to pass out regularly. By the time he was diagnosed he had no iron or vitamins left in his body, his liver wasn’t functioning correctly and he had the most severe damage his consultant had ever seen in a 4 year old with his villi nearly completely gone. Euan also has an iga deficiency which masks coeliac disease on a blood test making his journey to diagnose a long unnecessary process. If anyone has any symptoms of coeliac disease they must get tested for iga deficiency at the same time (not all gps know this.) If the iga test is postive a consultant must run more tests like the genetic screening. Now nearly 4 years later Euan is a completely different child, healthy, full of energy and loves his rugby. https://lnkd.in/d8gVZ756 #coeliaacawarenessmonth #CoeliacStories #coeliacuk
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Coeliac UK reposted this
Continuing with my contributions to #coeliacawareness month, I wanted to share all the amazing food I have eaten since going #glutenfree both dining out and dining in! Being told you have to cut gluten out of your diet is a massive change which completely turned my world and many others upside down as food is fundamental and frequently ingrained in social events. And let’s be real it seems like gluten is in nearly everything! Eating out in many cases as a coeliac is also scary as there is a huge deficit in education on coeliac disease and the importance of avoiding #crosscontamination. The first picture is of me eating out gluten free for the first time since my diagnosis at PizzaExpress who were incredible with their knowledge and labelling. I felt so safe and hope in the future this will be the norm throughout the catering industry. It’s been a massive learning curve but the only thing I have to thank my coeliac disease for is throwing me in the deep end with cooking. Frequently gluten free products available are minimal, much more expensive and accessibility to convenience foods which are gluten free is limited. I remember making a lasagna and looking in 4 different shops for gluten free lasagna sheets - in the end I had to make my own! But since my diagnosis I have grown to enjoy cooking and often experiment with new recipes. So for anyone new to the diagnosis or being gluten free - it gets better I promise and there are tons of great resources out there including Coeliac UK. Just because something is gluten free doesn’t mean it can’t taste delicious!
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Tune in to a special feature on coeliac disease for Coeliac Awareness Month on ITV's Lorraine tomorrow – Thursday 16 May. Dr Amir Khan will be discussing the intricacies of living with coeliac disease, its symptoms, and the importance of diagnosis. The segment is expected to air around 9.32 or 9.45 am (exact time TBC). We encourage everyone to comment and support the show. The more viewers they have, the more we can raise awareness and help others get on the road to diagnosis. #CoeliacAwarenessMonth
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Coeliac UK reposted this
Meet Paige Esson – our talented recipe developer and Glebe Farm Foods ambassador 🧡 Paige has been a devoted PureOaty fan for years, using our products in delicious gluten free recipes on her channel ‘Glutenless Paige’ – educating and inspiring the gluten free and coeliac community. After years of misdiagnosis and living with symptoms, ranging from severe fatigue and thinning hair, to bloating and stomach pain, it has been a long and difficult road for Paige to eventually be diagnosed as coeliac. However after adopting a gluten free diet, she saw drastic improvement in both her physical and mental health, now encouraging others to do the same. With a disease that debilitates through consuming the wrong foods, certified gluten free products are vital for people who are coeliac. That’s why it’s our mission to provide 100% pure, safe PureOaty products, that never compromise on taste. If you're experiencing any of these symptoms, or those highlighted in the Coeliac UK Awareness Campaign, please visit https://lnkd.in/ejGC2UHk and speak to your healthcare professional.
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