Our work outside the UK
Our coeliac society is the oldest and largest in the world and we are often seen as leading the way for other coeliac organisations.
With many of our laws originating in Europe, particularly those around labelling and food, working at European level is an important part of our work. We lobby the European Parliament and work with our European colleagues on legislation that affects us all.
As the owner of the worldwide rights to the trademark protected Crossed Grain symbol we are involved in developing gluten free markets worldwide. Interest in obtaining a license for the use of the symbol is steadily on the increase and we have been approached by gluten free producers from the Americas, Australia and the Far East.
Association of European Coeliac Societies (AOECS)
We are members of the Association of European Coeliac Societies (AOECS), the umbrella organisation of national coeliac societies in Europe. AOECS is an independent, not for profit organisation coordinating international activities and addresses matters of common interest to its members. Sarah Sleet, Coeliac UK's Chief Executive, has been an AOECS Board member since 2009 and served as its Chair from 2016 until 2018. The newly appointed Chair is Tunde Koltai of the Hungarian Coeliac Society. The Association’s administrative staff is based in the UK with a registered office in Brussels. Visit the AOECS website for more information.
Coeliac Youth of Europe (CYE)
The Coeliac Youth of Europe (CYE) focuses on networking and improving conditions for young people with coeliac disease. It is a working group of the AOECS and its representatives are selected from national coeliac societies across Europe. The CYE annual general assembly is linked to the AOECS general assembly and takes place each year in a different European location. For more information on CYE's activities, which include an annual summer camp in one of its member countries, visit the CYE website.
Our international work is not restricted to Europe and we collaborate particularly with coeliac organisations in the Americas and Australasia. Listed below are links to some of the main international coeliac organisations:
Asociación Celíaca Argentina - ACA
Asociación de Celiacos de Brasil - ACELBRA
Iranian Celiac Disease
Cölyakla Yasam Dernegi
European Food Safety Authority (EFSA)
European Patients' Forum (EPF)
International Alliance of Patients' Organizations (IAPO)
International Society for the Study of Celiac Disease (ISSCD)
Mediterranean Network for the Management of Food-Induced Diseases (MEDICEL)
The European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN)
United European Gastroenterology Federation (UEGF)