Patients’ and healthcare professionals’ perspectives on the reasons for long term follow up of coeliac disease and the manner it should take
Principal Investigator: Dr Manpreet Bains, lecturer in qualitative and mixed methods health research
Institution: Division of Epidemiology and Public Health, University of Nottingham
Research classification: Management of coeliac disease and dermatitis herpetiformis
Project start & duration: February 2016 (24 months)
Grant Awarded: £64.5k
Guidelines recommend that people with coeliac disease should be followed up annually by an appropriate physician or dietitian in secondary or primary care. However, not only do follow up practices vary but the evidence that has guided these recommendations has relied on the medical perspective and has failed to take into account the views of patients.
Research is needed to understand the experiences and views of follow up of people with coeliac disease, including those under active follow up in secondary or primary care and those who have opted out from attending follow up.
People with coeliac disease will be interviewed to explore the perceived benefits and barriers to follow up and allow the often over looked views of those who do not attend to be taken into account. Unpicking the reasons why people do/do not attend will help identify ways to improve follow up for patients.
Healthcare professionals involved in the management and treatment of people with coeliac disease will also be interviewed as their views are equally important.
Through the patient and healthcare professional interviews, this study aims to identify the most optimal forms of follow up. The findings can be used to inform the development of a larger trial to test the effectiveness of the various models of follow up that were identified.