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  4. Psychological and social factors associated with coeliac disease: a UK based study

Psychological and social factors associated with coeliac disease: a UK based study

Principal investigator: Dr Ruth Howard

Institution: University of Birmingham

Research classification: Prevention of disease and promotion of wellbeing

Project completion: 2011

Grant awarded: £76K

The aim was to try to better understand why some people are more vulnerable to poor psychological wellbeing and struggle more with managing the @gluten-free diet@ than others.

Around 20% of people who took part in the study experienced some level of psychological distress such as anxiety, stress or depression and these issues were seen more in women than men.

It was clear that coeliac disease affects the entire family and how the family responds can affect quality of life.

This was the first study of its kind carried out in the UK and it highlights the need for medical staff to consider the potential psychosocial impact of coeliac disease as well as the classic medical and dietary considerations.

Associated publications:

Ford, S., Howard, R., Oyebode, J. 2012 Psychosocial aspects of coeliac disease: a cross sectional survey of a UK population. Br. J. Health Psychol. Nov; 17 (4) 743-57

Rose, C. and Howard R. 2013 Living with coeliac disease: a grounded theory study. J. Hum. Nutr. Diet. Mar 21 doi 10.0000/jhn.12062 [Epub ahead of print]

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