Frequently Asked Questions Find everything you need to know about coeliac disease, the gluten free diet and the work we do.

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Do you work with the Government?

Yes, our parliamentary work helps us to influence policy and the decisions that affect people with coeliac disease. We have invested in this area to get the most for people with coeliac disease and so we have offices in Scotland and Wales.

How can I get Coeliac UK to campaign for me?

We are always on the lookout for ways that we can improve the lives of those with coeliac disease and DH. If you think there is something we could be campaigning on, get in touch with us.

How can my local NHS Trust support patients with gluten-free prescribing while meeting tighter NHS budgets?

Pharmacy supply schemes are currently running in a number of parts of the UK. These schemes have resulted in significant cost savings while continuing to support people with coeliac disease on the gluten-free diet. Read more information on these schemes.

Are the products listed in the vegetarian chapter suitable for a vegan diet?

The Vegetarian Chapter contains gluten free foods that are suitable for a vegetarian diet. Some products may also be suitable for a vegan diet, please refer to the manufacturer.

What should I cover when seeing a patient with coeliac disease?

Information on the management of coeliac disease, including new patient appointment and follow up appointment checklists can be found on the Coeliac UK website. You can also refer patients to Coeliac UK for further information and support on the gluten-free diet and access to resources. Find out more about the benefits for your patients of joining Coeliac UK.

What are the symptoms in babies?

In babies, symptoms may develop after weaning onto cereals that contain gluten.

Symptoms in babies include:

  • bloated tummy
  • irritability
  • diarrhoea and other gut symptoms
  • faltering growth or a change in growth pattern

Find out more about coeliac disease in children here or you can call our helpline and speak to one of our dietitians.

Why do I have to be eating gluten to be tested?

The blood tests look for antibodies that your body produces when you eat gluten so if you are not eating gluten you will not be producing antibodies and so the result will come back negative.

It is recommended that you eat some gluten in more than one meal every day for at least six weeks before testing.

How much does Coeliac UK spend on funding research?

Since 2005 we have committed around £3M to research. The amount available for any research call can vary depending on donations, receipt of legacies and external grants.

Are there any incentives for pharmacists taking part in the Community pharmacy supply of gluten-free foods scheme?

Introducing a pharmacy led supply scheme allows better stock control of gluten-free foods for pharmacists as well as providing a more flexible service to improve the patient experience.

Pharmacists and GP dispensaries are paid a service charge at six monthly intervals for each patient who accesses the service. When the scheme in Northamptonshire was introduced it was run as an Enhanced Service with funding for this element of the contract coming from Primary Care Contracting budgets.