Questions related to: I have just been diagnosed with coeliac disease, how can I join Coeliac UK?

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What can I do to help?

There is a range of ways to get involved, and there is something for everyone. Whether you tell your story through being a case study, write to your MP, collect signatures for a petition or host an event, everything helps to raise awareness about coeliac disease.

Where is Coeliac UK’s office based?

Coeliac UK main office:

Artisan
Hillbottom Road
High Wycombe
Buckinghamshire
HP12 4HJ

Tel: 0333 332 2033

How long do I have to eat gluten before being tested?

The recommendation is to eat some gluten in more than one meal every day for at least six weeks before getting tested for coeliac disease. Find out why you should keep eating gluten throughout the diagnosis process.

How can I give feedback about Coeliac UK?

So that we can constantly improve and update our services, we are always pleased to receive comments on the way we operate. Please get in touch to let us know what you think.

Is there a cure for coeliac disease?

Coeliac UK funded the initial project of Professor Bob Anderson which identified the most important gluten peptides causing problems for people with coeliac disease. This research formed the basis of further research and eventually the development of the NexVax2 vaccine. Work in this area is ongoing, the availability of a vaccine is still many years away whilst the essential process of testing for safety, dosage, effectiveness and possible side effects are determined.

Coeliac UK has also funded research which provides a greater understanding of the disease process in coeliac disease and research which can potentially identify new targets for treatment or a cure. 

I am a journalist, who can I contact?

If you have any queries relating to an article please email media@coeliac.org.uk or 01494 416372. The charity holds a database of case studies and would be happy to arrange interviews as required. We routinely issue news releases which attract national and local coverage.

Do Coeliac UK have any celebrity supporters?

Yes, the following celebrities are supporters of Coeliac UK:

 

  • Caroline Quentin
  • Chris Bavin
  • Dr Chris Steele MBE
  • Craig MacLean MBE
  • Jane Devonshire
  • Michael Obiora
  • Mari Wilson
  • Margo Buchanan
  • Phil Vickery

 

What is coeliac disease and dermatitis herpetiformis?

Coeliac disease is caused by a reaction of the immune system to gluten. The symptoms include:

  • bloating
  • diarrhoea
  • wind
  • constipation
  • nausea
  • tiredness
  • mouth ulcers
  • sudden weight loss
  • anaemia
  • osteoporosis.

Once diagnosed, it is treated by following a gluten free diet. Dermatitis herpetiformis is the skin manifestation of coeliac disease.

Why do I have to be eating gluten to be tested?

The blood tests look for antibodies that your body produces when you eat gluten so if you are not eating gluten you will not be producing antibodies and so the result will come back negative.

It is recommended that you eat some gluten in more than one meal every day for at least six weeks before testing.

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