Coeliac UK

There are a wide range of symptoms associated with coeliac disease, so it's not always easy to diagnose. The average time to diagnosis for adults from onset of symptoms is an alarming 13 years.  Our coeliac awareness campaign aims to change that by raising awareness of the wide range of symptoms and encouraging people to take our free online self-assessment if they spot something that sounds like them.  You may have been previously diagnosed with IBS, or may put your symptoms down to some other issue like the day to day stresses of life. Finding out the cause of the symptoms not only provides answers, but we often hear that it's a huge relief as people now know there's something they can do to feel better.  To find out more and take the self-assessment to see if you should be tested go to our campaign web page: https://lnkd.in/ejSdX5Ry #CoeliacAwarenessMonth #IBS #IrritableBowelSyndrome #Anaemia #CoeliacDisease

Having Shared on various other platforms it felt right to share here too Coeliac UK #coeliacawarenessmonth IT’S COELIAC AWARENESS MONTH!! 1 in 100 people in the UK have coeliac disease. Only 36% of people with coeliac disease are diagnosed. There are an estimated 500,000 people in the UK 🇬🇧 living with undiagnosed coeliac disease. Coeliac disease is a SERIOUS autoimmune condition. When someone with coeliac disease eats gluten, their body attacks its own tissues and causes gut damage. Coeliac UK’s online self-assessment tool is the first step towards diagnosis and feeling better. Symptoms are wide ranging including; sickness, diarrhoea, stomach pain, bloating, extreme fatigue, mouth ulcers, skin rash, tooth enamel problems, liver abnormalities, unexplained infertility (male & female), recurrent miscarriage, osteoporosis, neurological problems and slow growth in children. #coeliacdisease #coeliacawareness #coeliacuk #coeliacawarenessweek

What a phenomenal start to Coeliac Awareness Month! We are so grateful for the support we have received from our community so far! Thank you to everyone who has shared their own story on social media, used our twibbon on their profile pictures, attended our event at the Senedd in Wales and made their voice heard in some way - you are making a difference! Let's keep the momentum going for the remainder of the month and continue raising awareness and supporting others living gluten free. Check out our campaign page for more ways to get involved: https://lnkd.in/ejSdX5Ry Leave a comment below and let us know what you have planned for the rest of Coeliac Awareness Month! #CoeliacAwarenessMonth #CoeliacStories #CoeliacDisease #Coeliac #AutoImmuneDisease #Celiac #CeliacDisease

Coeliac Awareness Month 2024 🍔🍔 As many of you know, both myself and Pam Brown are both coeliac. I was diagnosed in December 2016 having been unwell for 6 months prior and testing negative on a blood test for coeliac. I was diagnosed through the fact I went privately and had an operation/investigations for the fact they believed I had something wrong with my overaries rather than my bowel. This operation led to a diagnosis of Coeliac. Pam Brown was diagnosed in January 2021 and it is believed the menopause triggered the start of this condition. 1 in 100 people in the UK have coeliac disease, but only 36% are diagnosed. That leaves a staggering 500,000 people suffering with unexplained symptoms. The main symptoms: • Persistent or unexplained nausea • Recurrent stomach pain, cramping or bloating • Tiredness • Anaemia • Mouth ulcers • Skin rash (Dermatitis Herpetiformis) • Bowel changes • Liver abnormalities … & lots more. For myself, when I had gluten or when I accidentally have gluten now.. I can only describe it as my whole body being on fire. It feels like my blood is boiling and very flu like symptoms (sounds weird, I know) For my mum, she felt like her body was attacking itself all day, everyday Having been on a gluten free diet for many years now… I’ve found the best alternatives to what I miss the most but I don’t think I’ll ever be able to walk into a bakery again to the smell of freshly baked crusty bread or a warm croissant 🥐 The biggest misconception surrounding coeliac is the fact it’s an allergy/ intolerance or choice!! It’s neither of these. It’s an autoimmune condition where our bodies literally attack themselves when they eat gluten! Please get tested if you think you may be coeliac (before starting a gluten free diet!!) We are here if anyone has any questions or if you are coeliac and have any good recommendations- please let us know!!💕 Have a lovely day all x Pam Brown Joe Brown Vicky Rock Coeliac UK #coeliacstories

May is Coeliac awareness month. Essential items required to feed a family can vary for many reasons, one of which is being diagnosed with Coeliac disease, "a serious illness where the body’s immune system attacks its own tissues when you eat gluten." Help us by donating Gluten Free food to one of our drop off sites. To learn more, visit Coeliac UK 's page and hear the empowering case studies of life after diagnosis, and to learn more about the support offered to those seeking a diagnosis. #foodbankdonations #coeliacuk #coeliacawarenessmonth #gloucesterfoodbank

#Job alert! #Postdoc position available in my lab starting September 2024 to study potential new therapeutic targets for Coeliac disease #Celiac. Please do get in touch if you have recently obtained your PhD in immunology, and are interested in working on an exciting project studying human intestinal T cells from patient samples. Collaboration with clinicians at the National Centre for Refractory Coeliac Disease, Sheffield. Official job advert to follow soon. Coeliac UK funded. Fully- funded, 3 years full-time position.

In the latest story from our Coeliac Awareness Month campaign, we chatted with Mita, a remarkable member of our Coeliac UK community who bravely shared her experience before being diagnosed. Find out more about her inspiring journey as she shares more around passion for gluten free cooking after her coeliac disease diagnosis. Learn more about Mita's story in our latest blog post: https://lnkd.in/eagbuxmU #CoeliacStories #CoeliacAwarenessMonth

We’re #hiring a new Trustee. Apply today or share this post with your network.

Meet Mita, whose journey to a diagnosis was marked by years of confusion and struggle. From a young age, she experienced severe symptoms that worsened as she reached adulthood, impacting her daily life and mental health. Despite numerous visits to doctors, her concerns were dismissed as stress and painful periods. It wasn't until she was hospitalised and underwent endoscopy and biopsy that she finally received a diagnosis of coeliac disease. This revelation brought immense relief and reignited her passion for cooking, allowing her to enjoy her favourite foods like roti again. If you're experiencing similar symptoms, don't dismiss them. It could be coeliac disease. Visit: https://lnkd.in/ev-TMMKe for more information and to take the online self-assessment. #CoeliacStories #CoeliacAwarenessMonth #CoeliacDisease #Coeliac #CoeliacUK

A medical diagnosis of coeliac disease not only changed my life but also had a huge impact on my family. A diagnosis of coeliac disease isn't as straightforward as it may seem and in my situation it set off a whole other chain of circumstances. During the testing process and when I was diagnosed, it was discovered I also had osteopenia and was completely deficient in IGA deficiency. Not only had I now to adapt to a completely new diet living gluten free, I also had to process the news that the calcium absorption problems experienced before diagnosis had affected my bone health. This was hard to take when I was still in my twenties. IGA deficiency was also something I had never heard of (IgA deficiency is a condition where the body doesn't produce enough immunoglobulin A (IgA), a type of antibody that helps fight infections. This can make people more prone to infections, ). This caused me lots of worry and affected me mentally particularly in the early days of COVID-19! I adapted though and as mentioned in my earlier post, got back to good health. This is where testing is key though. I noticed after my diagnosis a lot signs similar to my symptoms in my dad. I mentioned to him frequently to get tested as there was an increased chance of family also having coeliac disease. He eventually got the blood test and biopsy and got diagnosed at age 60. Fast forward to last year and my sister has also now been diagnosed. My advice is to persevere with your healthcare professional, push for testing with family members if you recognise symptoms and please try and keep gluten in your diet when in the testing process! We might be struggling for support within the NHS at the moment but the diagnosis is also important if you start experiencing other health issues and on your overall health. I think my story shows how important that diagnosis can be! It could not only impact your life but those who we love around us! #CoeliacStories #CoeliacAwarenessMonth