Coeliac UK

As we reflect on Coeliac Awareness Month, we’re thankful for incredible support from our community! Thank you to everyone who shared their stories, raised their voices, and helped to raise awareness. You’ve made a difference! Here’s a roundup of our impactful campaign: #CoeliacStories: Throughout May, we shed light on the various stories of undiagnosed coeliac disease featuring 6 brave individuals who came forward to share their story to help others. We also shared lesser known facts about associated conditions like Down’s syndrome and autoimmune thyroid disease. 𝐈𝐬𝐢𝐭𝐜𝐨𝐞𝐥𝐢𝐚𝐜𝐝𝐢𝐬𝐞𝐚𝐬𝐞.𝐨𝐫𝐠.𝐮𝐤: Our goal was simple - to encourage as many people as possible to take our free online self-assessment, or share with people that might be seeking answers for their symptoms. Getting on the road to recovery faster starts with awareness! At least 13k have taken the test so far, and it's available all year, so you can take it at any time 𝐋𝐞𝐠𝐢𝐬𝐥𝐚𝐭𝐢𝐯𝐞 𝐢𝐦𝐩𝐚𝐜𝐭: We took our campaign straight to the heart of legislative power. Events in the Welsh Parliament (Senedd) and the Northern Ireland Assembly, along with engagement across all four UK parliaments, amplified our message. 𝐒𝐮𝐩𝐩𝐨𝐫𝐭 𝐢𝐧 𝐄𝐯𝐞𝐫𝐲 𝐖𝐚𝐲: Whether you organised an awareness event, checked for local volunteer led activities, attended our Facebook cook-along with Becky Excell , or simply bought BFree Foods stone-baked pitta breads (20p per pack sold in May supports Coeliac UK), you’ve amplified our message and helped reach more people. How will you continue to make a difference? Remember, every action counts! If you think you might have coeliac disease, visit isitcoeliacdisease to take our self-assessment and check if you should be tested. #CoeliacAwarenessMonth #CoeliacStories

Meet Trudy: Mentor for the Coeliac UK Member2Member service As part of Volunteers' Week (3-9 June), we’re highlighting the incredible impact Coeliac UK volunteers have in our community. Today, we celebrate Trudy, one of our dedicated mentors for the Member2Member service. "𝘐 𝘣𝘦𝘤𝘢𝘮𝘦 𝘢 𝘮𝘦𝘯𝘵𝘰𝘳 𝘸𝘪𝘵𝘩 𝘊𝘰𝘦𝘭𝘪𝘢𝘤 𝘜𝘒 𝘢𝘴 𝘐 𝘢𝘭𝘴𝘰 𝘣𝘦𝘯𝘦𝘧𝘪𝘵𝘦𝘥 𝘧𝘳𝘰𝘮 𝘵𝘩𝘪𝘴 𝘩𝘦𝘭𝘱 𝘪𝘯𝘪𝘵𝘪𝘢𝘭𝘭𝘺 𝘵𝘰𝘰. 𝘌𝘢𝘴𝘪𝘯𝘨 𝘵𝘩𝘦 𝘵𝘳𝘢𝘯𝘴𝘪𝘵𝘪𝘰𝘯 𝘧𝘰𝘳 𝘴𝘰𝘮𝘦𝘰𝘯𝘦 𝘵𝘰 𝘢 𝘨𝘭𝘶𝘵𝘦𝘯 𝘧𝘳𝘦𝘦 𝘥𝘪𝘦𝘵 𝘪𝘴 𝘴𝘰 𝘪𝘮𝘱𝘰𝘳𝘵𝘢𝘯𝘵 𝘢𝘴 𝘪𝘵 𝘤𝘢𝘯 𝘣𝘦 𝘲𝘶𝘪𝘵𝘦 𝘰𝘷𝘦𝘳𝘸𝘩𝘦𝘭𝘮𝘪𝘯𝘨 𝘪𝘯 𝘵𝘩𝘦 𝘣𝘦𝘨𝘪𝘯𝘯𝘪𝘯𝘨. 𝘖𝘧𝘧𝘦𝘳𝘪𝘯𝘨 𝘵𝘪𝘱𝘴 𝘢𝘯𝘥 𝘢𝘥𝘷𝘪𝘤𝘦 𝘢𝘯𝘥 𝘩𝘦𝘭𝘱𝘪𝘯𝘨 𝘵𝘩𝘦𝘮 𝘨𝘦𝘵 𝘰𝘯 𝘵𝘩𝘦 𝘳𝘪𝘨𝘩𝘵 𝘵𝘳𝘢𝘤𝘬 𝘰𝘳 𝘴𝘰𝘮𝘦𝘵𝘪𝘮𝘦𝘴 𝘫𝘶𝘴𝘵 𝘭𝘪𝘴𝘵𝘦𝘯𝘪𝘯𝘨 𝘵𝘰 𝘵𝘩𝘦𝘮. 𝘍𝘰𝘳 𝘮𝘦, 𝘪𝘵’𝘴 𝘢 𝘸𝘢𝘺 𝘰𝘧 𝘨𝘪𝘷𝘪𝘯𝘨 𝘣𝘢𝘤𝘬." Coeliac UK's Member2Member peer support service taps into the knowledge of members who have experience of living gluten free. Many of us can remember what it felt like to get diagnosed at the beginning of that gluten free life and how difficult it seemed. And if you're feeling like this, you're not alone. Our Member2Member scheme is here to help you. If you are a member of Coeliac UK and would like to speak to somebody else with the condition, or if you are supporting your child through their diagnosis and adjustment to a gluten free diet, Member2Member would be perfect for you. From the comfort of your own home, you can connect with our established and experienced members who offer a listening ear, kind word, and support for as little or as long as you need it. To apply please complete our online form or email member2member@coeliac.org.uk. if you're interested in volunteering with us take a look at the roles we are currently recruiting too: https://lnkd.in/ehbP-Jy2 #VolunteersWeek #Volunteers #Charity #CoeliacUK

The ducks are on the road again, visiting Coeliac UK offices for their volunteer day for their update #ducksinarow #nearmissreporting

Help fund exciting new research at Oxford University. Give today and help the immunology team unlock answers of rogue immune cells. Any donation, big or small, will be doubled. Find out more: https://bit.ly/3X5ofkC #ResearchAppeal #Research #CoeliacDisease #CoeliacUK #OxfordUniversity #RogueCells

Gluten Free Air Fryer by Becky Excell is available now. Gluten Free Air Fryer shows you everything you need to know about this essential appliance, with a huge variety of practical, delicious gluten free dishes. Enjoy thin and crispy pizza that's ready to eat in just 15 minutes, golden zinger burgers that you'd swear were deep-fried, bakery style sausage rolls or veggie bakes to serve up the ultimate lunch and mini doughnut holes or iced buns for when you fancy something sweet Support Coeliac UK by ordering your signed copy from our shop today: https://lnkd.in/eR7jueyz Price includes postage & packaging, proceeds from sales through our shop help to support our work.

Join our Member Review Panel (MRP) and help review applications for research funding! At Coeliac UK, it's really important to us that our members have their say on the research we fund. Whenever we receive applications for funding, we invite our members to share their views on these. We're incredibly grateful to those who volunteer, as it ensures we're funding research that is relevant to our community. "I'm delighted to be a volunteer on the Member Review Panel. It enables me to use some of my skills to give something back to Coeliac UK for all the ways they have helped me since I was diagnosed with coeliac disease. It's really interesting to hear of all the great research that is taking place around coeliac disease and I really hope that in some small way my views can help improve the lives of people with the disease." - Dr Jonathan Smith Thank you to everyone who has participated in our MRP in the past including Jonathan! Last year, we were fortunate to have 166 volunteers give up their time to provide feedback on the applications we received for funding to our 2023 research calls. Celebrate Volunteers Week by joining us and making a difference. Any member of Coeliac UK is welcome to join. You can read more about the role here: https://bit.ly/4aSVgnp Sign up for the 2024 panel here: https://bit.ly/3x1T9jh Thank you for your support! #VolunteersWeek #CoeliacUK #GlutenFree #Research

Thank you BFree Foods for your incredible support! We are delighted to celebrate the success of the #spreadalittlepittalove campaign and the amazing donation of £26,000. We would like to say a huge thank you to our wonderful community and network for sharing and purchasing the limited edition packs during Coeliac Awareness Month.

Meet Chris Dilloway: Chair of the Board at Coeliac UK "My daughter has coeliac disease and was only 18 months old when she was diagnosed. As a family, we really appreciated the support from Coeliac UK, and we used a lot of the resources available to members to help us adjust to the lifelong diet my daughter needs to follow. We give to the charity, but I wanted to do more to help, so two years ago I applied to volunteer as a trustee. At work, I am a partner in a strategic advisory business, and so I hoped that my professional experience and skills might be valuable to the charity. Having been a trustee for nearly two years now, I can honestly say that it’s some of the most fulfilling and enjoyable work I do. I’m hugely proud of the work that the team at Coeliac UK and all of our wonderful volunteers do." Learn more about Chris and our other dedicated trustees on our website: https://lnkd.in/ew63k_EX #VolunteersWeek #CoeliacDisease #CoeliacUK #GlutenFreeDiet

As part of Volunteers Week, we’re thrilled to spotlight Sonny, one of our dedicated volunteers who recently hosted a successful local meetup in Battersea. Sonny brought together individuals with coeliac disease and those living gluten free for an informal and supportive gathering at Gluten Free accredited venue Pizza Express. Sonny’s warm hearted approach and dedication to building community are making a positive impact. Read more here: https://lnkd.in/e6VhEJcx #VolunteersWeek #Volunteer #Volunteers #CoeliacUK #CoeliacDisease #GlutenFreeDiet

Coeliac UK volunteers: Making a difference together! From 3 to 9 June, we’re celebrating our dedicated volunteers who play a crucial role in supporting their local community. These unsung heroes include; Local Group, Community Team and Member2Member volunteers, Meet Up hosts and Trustees. Our volunteers help ensure nationwide coverage through over 30  Local Groups (with elected committees); Community Teams and Local Meet Up Hosts, run by local people living with coeliac disease or with a close family member who has it. They provide invaluable support and create a sense of community for those living gluten free across the UK. How can you get involved as a volunteer? Committee Member: Provide local support through our active Local Groups, making a direct impact in your community. Local Meet Up Host: Create relaxed and informal gatherings for people with coeliac disease and those living gluten free, fostering connections and support networks. Community Team Co-Leader: Lead community teams in organising activities like talks, coffee mornings, awareness events, and more to raise awareness and support. Learn more about how you can get involved: https://lnkd.in/ehbP-Jy2 Thank you to all our volunteers for their incredible impact! Together, we are making a difference. #VolunteersWeek #Volunteers #Volunteer #CoeliacUK #CoeliacDisease