The effects of living with coeliac disease on the psychological wellbeing and quality of life of adolescents and their mothers

Introduction

This project will provide a more in-depth understanding of the needs of adolescents with coeliac disease and their mothers post diagnosis. It is important to ask adolescents and their mothers how they feel and what they need in order to provide the right support and to target interventions to improve wellbeing, adherence to the gluten free diet and quality of life.

Who can take part?

If you would like to take part in the study, you must be:

  • A mother of an adolescent aged 11-15 years with coeliac disease
  • Adolescent must be willing to take part and have been diagnosed with coeliac disease for at least 6 months
  • Living in the United Kingdom 

What is involved?

You will be invited to take part in an online interview via Zoom, to talk about your experiences with coeliac disease.

  • Interview with mother 35-40 minutes
  • Interview with adolescent 20-25 minutes

How to take part

If you are interested in taking part in the study, or would like more information, please email Ummara.Akhtar@study.beds.ac.uk. Please note that by making contact and showing an interest you are not obliged to take part in the study.

This is a study by the University of Bedfordshire and has been approved by The School of Centre for Applied Psychology, of University of Bedfordshire, Ethics Committee. The study was awarded as a Coeliac UK sponsored dissertation 2020.

Ummara Akhtar is studying for a MSc in Health Psychology degree in University of Bedfordshire. This research will form part of Ummara's dissertation.