Tell your story and help others

Share your storyBy telling real stories we can reach people who might be sharing your experiences and need our help. Case studies are so important to raise awareness of coeliac disease and the challenges of living gluten free.
Telling real stories about real people has real impact and just by sharing your experiences, you could raise awareness of coeliac disease and help someone get diagnosed.
The media often contact us looking to speak to people about their personal stories and we can only do this with the support of our amazing community.

The process

All you would have to do initially is complete the form, giving us as much information as possible. Then we would contact you if we had a media enquiry and you fit the brief. We would contact you and have a chat with you to check you were comfortable with the opportunity and you had all the information you needed. The journalist would then contact you by phone. You may need to supply photos of yourself or a photographer may come to you.
It really is that simple. If you would like to help, please complete the form, upload a recent photograph and share your story.

Case study personal details
Gender*

Include name, date of birth of child and contact details for parent/carer

Experiences with coeliac disease

Please complete the sections below with as much detail as possible.

Please provide details of the symptoms you experienced pre-diagnosis.

Please give a short history of any difficulties you came across obtaining a diagnosis. For example, the number of times you spoke to your GP about your symptoms, if you had to go on the gluten challenge as you had already removed gluten from your diet

Do you have anything else you would like to say about a gluten free diet, particularly when eating out or on the move?

If so, please give details.

Has a particular GP or hospital actually been really helpful in your journey with coeliac disease or were you treated really poorly?

Please give details. For example, who and when were they diagnosed and how many close family members are currently diagnosed and would they be happy to be featured as a case study too?

Additional information

Please tick if you have any of the following illnesses

Important information

Coeliac UK will use the personal and health information you have given on this form to promote awareness about coeliac disease and gluten related conditions. If we want to pass this information on to the media we will contact you again for permission. The media may then want to interview you, either in person or over the telephone, and take a photograph to accompany an article. Coeliac UK cannot control how your material gets used by other organisations, or guarantee that it will appear in the way you would like. However, we strive to ensure that it is treated with the utmost dignity and respect and portrayed as accurately as possible.

We care about your privacy, so we will keep your data secure and you can rest assured we won’t give any information about you to other organisations not working on our behalf. You can see our full Privacy Policy at www.coeliac.org.uk/privacy-policy. We will contact you after three years to ask if you are still willing for us to use your information in this way.

Please tick the box to indicate that you have read the information above:*
Verification

Please click the box to indicate you are a human rather than an automated system completing this form.

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