Governance and Policies

Governance and committees

The Charity is registered with the Charity Commission and Companies House as a company limited by guarantee and we are governed according to our Articles of Association. You can find a copy of these articles at the bottom of the page.

The Board of Trustees

The overall responsibility for the work of the charity lies with the Board of Trustees. The Board sets the strategy, agrees objectives and approves plans to deliver the charity's aims. They monitor and evaluate the progress of the charity to ensure we achieve what we have set out to do. The Board is held to account by the membership at the Annual General Meeting at which it presents the Trustees' report and the financial accounts for the previous year.

The Board may comprise of up to nine elected members, two co-opted and one nominated from the Health Advisory Council. The elected members are elected by the Membership at the Annual General Meeting for a three year term of office. They may serve no more than two consecutive three year terms.

The expertise within the Board is substantial and wide ranging. Trustees include experienced senior healthcare professionals, legal professionals, a financial analyst, a management consultant and a communications specialist. All Trustees are volunteers committing many days, evenings and weekends of the year to working for the charity.

Board committees

The Board of Trustees delegate some of its responsibilities to Board committees to provide a particular focus on some issues:

  • Audit Committee  - ensures the financial compliance and the robustness of the Board's overall monitoring and governance (Trustees involved: Fiona Fowler, Maureen Burnside, Angeli Hemnani, Les O'Dea and Reshma Shah)
  • Human Resources Committee - reviewing overall HR policies and ensuring legal and best practice compliance (Trustees involved: Margaret Morgan, Maureen Burnside, Les O'Dea, Anita Patel and Nicky Valmas)
  • Commercial Committee - providing the charity with expert insight and fulfilling the governance requirements for the detailed scrutiny and oversight of the commercial strategy and delivery (Trustees involved: Clive Warner, Nicky Valmas and Maureen Burnside)
  • Executive Action Committee - to be activated when there is a crisis and the Board cannot be convened

The Board also has two established advisory groups: the Health Advisory Council (Trustee involved: Gerry Robins) and the Food Standards Committee (Trustees involved: Claire Andrews and Maureen Burnside). Each provides advice and intelligence on matters relating to the health and food sectors respectively. We also have a wider advisory group drawing on healthcare professionals from across the UK. This is called our Health Advisory Network.

To oversee the management of the charity’s Research Fund the Board has established three new bodies:

  • Research Strategy Board (Trustees involved: Alan Perkins and Anita Patel) providing overall strategic direction for the spending of the Fund.
  • Research Awards Panel (Trustee involved: Alan Perkins) managing the awarding of grant funds to applicants with any final recommendations for the Board's approval.
  • Fundraising Committee providing detailed scrutiny and oversight of fundraising associated with the Fund (Trustees involved: Les O’Dea, Maureen Burnside, Angeli Hemnani and Margaret Morgan)

The Coeliac UK Trading Company Ltd

The Trading Company’s principle aim is to raise funds from commercial activities for the charity. As a not for profit organisation, Coeliac UK is limited in the amount of commercial income it may raise. Instead, these activities need to be carried out by Coeliac UK’s Trading Company. Directors of the Trading Company are:

  • Maureen Burnside, Trading Company Director and Trustee at Coeliac UK
  • Hilary Croft, Trading Company Director, Chief Executive of Coeliac UK
  • Ife Kantonna, Company Secretary and Director of Finance of Coeliac UK
  • Helen North, Trading Company Director, Director of Fundraising of Coeliac UK
  • Clive Warner, Trading Company Director and Trustee at Coeliac UK