Frequently Asked Questions Find everything you need to know about coeliac disease, the gluten free diet and the work we do.

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Can only children get coeliac disease?

Coeliac disease can develop and be diagnosed at any age. It may develop any time from after weaning to later in life and any time between. Coeliac disease is most frequently diagnosed in people aged 50-70 years old. Delayed diagnosis is common, Coeliac UK research shows the average time it takes to be diagnosed is 13 years.

Can the Community pharmacy supply of gluten-free foods scheme be followed in rural and urban areas?

There is no reason why this scheme cannot be successful in either rural or urban areas. Using an online claim service would ensure efficiency and that GP dispensaries work to the same enhanced service contract as the pharmacies.

What are my rights and obligations as a Member?

You can download our full Memorandum and Articles of Association which will explain all the rules underpinning the Charity.

Can I eat whey powder?

Whey is produced from milk and does not contain gluten.

Can I eat maltodextrin?

Maltodextrin is gluten-free. It can be made from a variety of cereal starches including wheat, corn (maize), tapioca and rice. Despite the name, maltodextrins are not produced from, nor do they contain barley malt. Even when maltodextrin has been made from wheat, the grain is processed to remove the gluten.

What should I do if my local restaurant hasn’t heard about the law on gluten-free?

Give them more information about the law or pass them onto us and we can help. We have lots of information in our Food Industry Professionals section.

Can you recommend a coeliac disease specialist consultant for me to see?

Although we cannot recommend a specific consultant / Gastroenterologist, we suggest visiting www.specialistinfo.com or NHS choices for more information on consultants by speciality and geographic area.

I don’t have much spare time; will fundraising take up a lot of my time?

There are many ways you can fundraise without giving up a lot of your precious time and we are grateful for any time you are able to give.

Whether you’re willing to supply your local supermarket with our collection tins, offer your help at a preplanned event or even take on a challenge such as a half marathon, there are many ways you can get involved.

Contact our Fundraising Team to find out more about the ways you can give your time to fundraise.

Are there any incentives for pharmacists taking part in the Community pharmacy supply of gluten-free foods scheme?

Introducing a pharmacy led supply scheme allows better stock control of gluten-free foods for pharmacists as well as providing a more flexible service to improve the patient experience.

Pharmacists and GP dispensaries are paid a service charge at six monthly intervals for each patient who accesses the service. When the scheme in Northamptonshire was introduced it was run as an Enhanced Service with funding for this element of the contract coming from Primary Care Contracting budgets.

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