Frequently Asked Questions Find everything you need to know about coeliac disease, the gluten free diet and the work we do.

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Why do you not have barcodes for all products listed in the Directory?

Since the development of our mobile app, barcodes have become an important piece of information to ensure that the scanning function works. Manufacturers and retailers with online shops list all their products, not just gluten-free ones, including the barcode information with Brandbank. We have been working with Brandbank to increase the number of products listed in the directory and the percentage with barcodes. By using this data we have been able to increase the number of products listed in the 2015 directory by 50% and the number of products with barcodes to 97%.

Can only children get coeliac disease?

Coeliac disease can develop and be diagnosed at any age. It may develop any time from after weaning to later in life and any time between. Coeliac disease is most frequently diagnosed in people aged 50-70 years old. Delayed diagnosis is common, Coeliac UK research shows the average time it takes to be diagnosed is 13 years.

What should I do if my local restaurant hasn’t heard about the law on gluten-free?

Give them more information about the law or pass them onto us and we can help. We have lots of information in our Food Industry Professionals section.

What are my rights and obligations as a Member?

You can download our full Memorandum and Articles of Association which will explain all the rules underpinning the Charity.

Can I eat whey powder?

Whey is produced from milk and does not contain gluten.

Can I eat maltodextrin?

Maltodextrin is gluten-free. It can be made from a variety of cereal starches including wheat, corn (maize), tapioca and rice. Despite the name, maltodextrins are not produced from, nor do they contain barley malt. Even when maltodextrin has been made from wheat, the grain is processed to remove the gluten.

Can the Community pharmacy supply of gluten-free foods scheme be followed in rural and urban areas?

There is no reason why this scheme cannot be successful in either rural or urban areas. Using an online claim service would ensure efficiency and that GP dispensaries work to the same enhanced service contract as the pharmacies.

Are there any incentives for pharmacists taking part in the Community pharmacy supply of gluten-free foods scheme?

Introducing a pharmacy led supply scheme allows better stock control of gluten-free foods for pharmacists as well as providing a more flexible service to improve the patient experience.

Pharmacists and GP dispensaries are paid a service charge at six monthly intervals for each patient who accesses the service. When the scheme in Northamptonshire was introduced it was run as an Enhanced Service with funding for this element of the contract coming from Primary Care Contracting budgets.

Can you recommend a coeliac disease specialist consultant for me to see?

Although we cannot recommend a specific consultant / Gastroenterologist, we suggest visiting www.specialistinfo.com or NHS choices for more information on consultants by speciality and geographic area.

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