Our work in Scotland

We represent the interests of thousands of members in Scotland by working with healthcare professionals, politicians, government ministers and the media, all of whom have a critical role to play in the lives of people affected by coeliac disease across the country.

Our influencing puts us at the heart of decision making in Scotland and we use the experiences of our members to strengthen our impact.

We also work with our seven Local Groups and over 5,000 members to provide support and advice to those with coeliac disease in their local communities.

Protecting  and improving delivery of your gluten free prescriptions

If you have a diagnosis of coeliac disease, you are entitled to free gluten free staple foods on prescriptions in Scotland. We have secured commitments from the Scottish Government to protect gluten free prescriptions and we work with Health Boards to ensure provision is maintained at a local level.

Gluten free prescriptions in Scotland are provided by the NHS Scotland’s Gluten Free Food Service (GFFS). Patients order directly from their local community pharmacy items they need up to a set number. Pharmacies also provide an annual health check to review how patients are getting on with the gluten free diet and whether they need any clinical support. Coeliac UK helped develop this service and works with NHS Scotland to make sure it meets the needs of those with coeliac disease.

Securing better support for children with coeliac disease in school Coeliac UK has been working hard to improve the support available to children with coeliac disease in Scottish schools. We have worked with local authorities to improve school meals and we contributed to Scottish Government guidance on the Healthcare Needs of Children in Schools with key elements relevant to coeliac disease. Our Schools Information Pack for Parents has really practical advice for supporting parents of children with coeliac disease in school.

Developing a new patient pathway

The NHS in Scotland is developing a new clinical pathway for patients newly diagnosed with coeliac disease. Coeliac UK is working closely in partnership so that the pathway – which covers diagnosis, treatment and review – works in the best interests of people with coeliac disease. The new pathway is expected in 2020.

Supporting members through our local groups

We have 7 local groups across Scotland of volunteers who meet regularly to provide support and advice to each other at a local level, as well as raising awareness of coeliac disease and Coeliac UK.

Diagnosing more people in Scotland

We are committed to tackling the problem of under diagnosis of coeliac disease in Scotland, where only 34% of people with the condition are diagnosed. We received a grant from the Big Lottery Fund in 2018 to raise awareness across local communities and we work in partnership with workplaces, media and healthcare providers to reach out to those in need of a diagnosis.