Frequently Asked Questions
How does your work influence decisions that affect people with coeliac disease?
We are often consulted on areas of concern for people with coeliac disease and DH. This includes working with the Food Standards Agency, Department of Health and National Institute of Health and Clinical Excellence (NICE).
Can anyone help with research?
Members of Coeliac UK can opt in to be contacted about research and opportunities to get involved in research will be advertised on our website here: www.coeliac.org.uk/research/our-approach/recruiting-for-research
Members and non members are welcome to apply for research, but projects will have different inclusion and exclusion criteria such as: age, gender, location, length of diagnosis, etc., which may mean that some people are not suitable for particular projects.
If I have registered as being interested in research, must I participate?
No, participation is always voluntary. After you have received information about a research project you are not obliged to participate and if you do consider becoming involved, you also have the right to change your mind at any time.
Where does the money come from to fund research?
The money comes from membership fees, donations, legacies or external grants we have applied for.
How much does Coeliac UK spend on funding research?
Since 2005 we have committed around £3.5M to research. The frequency of research calls and the amounts available for each one vary depending on donations, receipt of legacies and external grants.
Are you funding any research into a vaccine (or cure) for coeliac disease?
Coeliac UK funded the initial project of Professor Bob Anderson which identified the most important gluten peptides causing problems for people with coeliac disease. This research formed the basis of further research and eventually the development of the NexVax2 vaccine.
Unfortunately, this work was halted in 2019 as results showed that it did not provide sufficient protection to gluten exposure. Coeliac UK is committed to funding research which provides a greater understanding of the disease process to identify new targets for treatment or a cure.
I would like to donate money for research into coeliac disease, who do I contact?
Our Fundraising Team will be able to help you with your donation - please phone 01494 796 136 to speak to one of our Team Members or email email@example.com.
Do you conduct research at Coeliac UK or do you only fund research?
How do you decide on what research to focus within Coeliac UK?
How can I have my research proposal considered for funding by Coeliac UK?
When Coeliac UK has a Research Call it will be advertised and posted on our website and across our social media platforms where you are encouraged to apply.
Outside of a Research Call, we are also interested in hearing about your research proposals as we may be able to help with extended research networks and there is often mutual benefit. We can also add your details to the Research Register we hold for coeliac disease and dermatitis herpetiformis.
If you would like to tell our Research Team about your research, then you can always complete our online form.
How do you decide on which external research projects should be funded?
Research proposals are screened by our Policy, Research and Campaigns team for their completeness.
Our Research Awards Panel comprises of experts who make recommendations for funding, either autonomously or based on the feedback of experts external to the panel and the lay Member Review Panel. The selection of proposals for funding by our Research Awards Panel, is based strictly on peer review evaluation of scientific excellence and against the criteria of our Research Strategy.
Research must underpin our top ten research priorities
I would like to present a poster at your Research Conference. How can I do this?
If there is a planned poster presentation then a call for abstracts associated with the Research Conference will be advertised on our website with instructions on how to make a submission.
What is the Coeliac UK Research Conference?
Each year Coeliac UK holds a Research Conference for healthcare professionals to provide an update on the latest research and best practice. Previously the conference was held in London but for the last few years the conference has taken place virtually as a series of pre-recorded talks.
Who is able to view the talks from the Research Conference?
The talks are aimed at employees of the NHS involved in the diagnosis and/or management of patients with coeliac disease and/or gluten related conditions, plus academics, researchers or students who have an interest in coeliac disease, gluten related conditions and/or the gluten free diet.
Each talk will have a set of CPD questions, which you can complete for a certificate for your records.
The talks are available online for anyone to watch. Please find past recordings here: www.coeliac.org.uk/research/our-approach/research-conference/