Frequently Asked Questions
How does your work influence decisions that affect people with coeliac disease?
We are often consulted on areas of concern for people with coeliac disease and DH. This includes working with the Food Standards Agency, Department of Health and National Institute of Health and Clinical Excellence (NICE).
Can anyone help with research?
All members have the opportunity to opt in to be contacted by Coeliac UK with regard to research. However some research projects are not open to all as they can have specific inclusion criteria, for example: age, length of diagnosis, gender, living location etc. which can result in some people not being suitable.
If I have registered as being interested in research, must I participate?
No, participation is always voluntary. After you have received information about a research project you are not obliged to participate and if you do consider becoming involved, you also have the right to change your mind at any time.
Where does the money come from to fund research?
The money comes from membership fees, donations, legacies or external grants we have applied for.
How much does Coeliac UK spend on funding research?
Since 2005 we have committed around £3M to research. The amount available for any research call can vary depending on donations, receipt of legacies and external grants.
Are you funding any research into a vaccine (or cure) for coeliac disease?
Coeliac UK funded the initial project of Professor Bob Anderson which identified the most important gluten peptides causing problems for people with coeliac disease. This research formed the basis of further research and eventually the development of the NexVax2 vaccine. Work in this area is ongoing, the availability of a vaccine is still many years away whilst the essential process of testing for safety, dosage, effectiveness and possible side effects are determined. Coeliac UK has also funded research which provides a greater understanding of the disease process in coeliac disease, research which can potentially identify new targets for treatment or a cure.
I would like to donate money for research into coeliac disease, who do I contact?
Do you conduct research at Coeliac UK or do you only fund research?
How do you decide on what research to focus within Coeliac UK?
How can I have my research proposal considered for funding by Coeliac UK?
When Coeliac UK has a Research Call it will be advertised and posted on our website and across our social media platforms where you are encouraged to apply.
Outside of a Research Call, we are also interested in hearing about your research proposals as we may be able to help with extended research networks and there is often mutual benefit. We can also add your details to the Research Register we hold for coeliac disease and dermatitis herpetiformis.
If you would like to tell our Research Team about your research, then you can always complete our online form.
How do you decide on which external research projects should be funded?
Research proposals are screened by our Policy, Research and Campaigns team for their completeness. Our Research Awards Panel comprises of experts who make recommendations for funding, either autonomously or based on the feedback of experts external to the panel and the lay Member Review Panel. The selection of proposals for funding by our Research Awards Panel, is based strictly on peer review evaluation of scientific excellence and against the criteria of our Research Strategy.
Who can attend the Coeliac UK Research Conference?
Employees of the NHS involved in the diagnosis and/or management of patients with coeliac disease and/or gluten related conditions. Academics, researchers or students, employed or registered with a university, and have an interest in coeliac disease, gluten related autoimmune conditions and / or the gluten free diet. All Coeliac UK members can access Powerpoint presentations (where permission from the speaker has been given) and videos for each of the talks which can be accessed via membership login.
I would like to present a poster at your Research Conference. How can I do this?
If there is a planned poster presentation then a call for abstracts associated with the Research Conference will be advertised on our website with instructions on how to make a submission.