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  4. Campaign with us on prescriptions

Campaign with us on prescriptions

  • Following a strict gluten-free diet for life is the only treatment for people with coeliac disease
  • Some Clinical Commissioning Groups are consulting on, restricting, or even removing gluten-free prescription services
  • Coeliac UK is campaigning for this vital service and to make sure that the voices of people with coeliac disease are heard and considered in local decision making
  • But we can’t do it without you - please help us.

Local voices and local decisions

NHS policy making is happening at a local level, so it is important to make your voice heard. You have a lot of impact as a patient affected by NHS policy - use this to your advantage and help support our campaign as we make the case for gluten-free prescribing. 

Already feedback from Members and healthcare professionals has helped in our communications with Clinical Commissioning Groups (CCGs) and helped us win some victories. A number of Trusts have revised their policies to reinstate products previously removed which bring them more in line with national guidelines. Your support will help us continue this.

Write to your MP

Your MP is elected to work on your behalf and they can help you at a local level. We have drafted a sample letter that you can use, or you could write your own letter explaining how the changes will affect you. If you don’t know who your MP is, you can find out by using the Find your MP section of the UK Parliament website, all you’ll need is your postcode.

Complain to the CCG, HealthWatch or Health and Wellbeing Board

If your prescription service is being restricted or withdrawn, contact your CCG in the first instance. If you’re not satisfied with the response, you can write to HealthWatch which is the national consumer champion for health and care. The organisation has statutory powers to ensure the voice of the patient is strengthened and heard by those who commission, deliver and regulate health and care services. Use this link to find your nearest Local Healthwatch. You might want to refer to our parliamentary briefing note for evidence or supporting statements to include in your letter.

You can also write to the local Health and Wellbeing Board which aim to give communities a greater say in understanding and addressing their local health needs and have a strategic influence over commissioning decisions across health. A directory of all Health and Wellbeing Boards can be found on the Kings Fund website. We have drafted a sample letter you can use.

Tell your story

We are telling the media about this issue so that people understand why gluten-free prescribing is important. You can help us by telling us how prescriptions affect you by being a case study and making the story human. Complete our case study form and tell us how prescriptions affect you.

How do I find out more?

Please look out for updates and developments in your online newsletter and Crossed Grain magazine, or you can contact us through our contact form.

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