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Campaign with us on prescriptions

  • Following a strict gluten-free diet for life is the only treatment for people with coeliac disease
  • The Department of Health and Social Care has announced a decision on the future of gluten free prescribing
  • Some Clinical Commissioning Groups are consulting on, restricting, or even removing gluten-free prescription services
  • Coeliac UK is campaigning for this vital service and to make sure that the voices of people with coeliac disease are heard and considered in local decision making
  • But we can’t do it without you - please help us.

Department of Health consultation

The future of gluten free prescribing in England has been reviewed by the Department of Health and Social Care. In March 2017, three options were put forward for consideration as part of the consultation:

  • No change
  • Complete removal of access to prescriptions
  • Restriction to the type of products available

The decision has now been announced to retain access to gluten free bread and flour mixes on prescription in England and in December 2018, NHS England published guidance on gluten free food on prescription. 

Local voices and local decisions

NHS policy making is also happening at a local level, in England this is carried out by clinical commissioning groups (CCGs). It is important to make your voice heard and you have a lot of impact as a patient affected by NHS policy - use this to your advantage and help support our campaign as we make the case for gluten free prescribing. 

Already, feedback from members and healthcare professionals has helped in our communications with Clinical Commissioning Groups (CCGs) and helped us win some victories. Your support will help us continue this.

Campaign with us

If your prescription service is being or has already been restricted or withdrawn, please write to your MP to ask for their support now that the Department of Health and Social Care has announced their decision on the future of gluten free prescribing in England. You can write to or email your MP using our template letter and you can use the website below to find our who your MP is and to find their contact details. 

You can also contact your CCG directly, contact details for CCGs are available on the NHS England website. If you’re not satisfied with the response, you can write to Healthwatch which is the national consumer champion for health and care. The organisation has statutory powers to ensure the voice of the patient is strengthened and heard by those who commission, deliver and regulate health and care services. Use this link to find your nearest Local Healthwatch. You might want to refer to our briefing for MPs for evidence or supporting statements to include in your letters.

You can also write to the local Health and Wellbeing Board which aim to give communities a greater say in understanding and addressing their local health needs and have a strategic influence over commissioning decisions across health. A directory of all Health and Wellbeing Boards can be found on the Kings Fund website. We have drafted a sample letter you can use.

Tell your story

We are telling the media about this issue so that people understand why gluten-free prescribing is important. You can help us by telling us how prescriptions affect you by being a case study and making the story human. Complete our case study form and tell us how prescriptions affect you.

How do I find out more?

Please look out for updates and developments in your online newsletter and Crossed Grain magazine, or you can contact us through our contact form.

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