Questions related to: I have just been diagnosed with coeliac disease, how can I join Coeliac UK?

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Have you tried to keep the membership fee the same?

Yes, Membership fees have been the same for five years and this is only the second fee increase in 11 years. We need to safeguard the membership scheme so we can cover the cost of providing the services. To do this, we carried out financial modelling and made sure that we validated our thinking by looking at the membership fees set by other charities. We’re pleased to say that we’re still one of the most generous, even with the fee increase.

How can I update my contact details?

You can amend your personal contact details, email address and login details in your Scrapbook. You need to be logged in to do this, so if you are not already logged in you'll need to have your username and password at hand. Alternatively you can email us or phone us on 0333 332 2033.

What is special about Coeliac UK?

Coeliac UK is the only national Charity supporting people with coeliac disease in the UK. It is also the biggest coeliac society in the world and regularly shares knowledge and advice with international colleagues. What’s more, in 2005 Coeliac UK funded the largest ever series of research projects into coeliac disease.

Is it worth me renewing my membership with Coeliac UK?

Yes, together we continue to make a difference so no one’s life is limited by gluten. Our resources will help you with every aspect of your gluten free life.

As our reminder, with our Membership you will get:

  • Our essential Food Information Service listing over 150,000 gluten free and mainstream, products, updated daily
  • Our Live Well Gluten Free app to scan and check food as you shop and search over 3,000 gluten free accredited venues
  • Over 1,000 recipes for every occasion in our Home of Gluten Free Recipes
  • Travel tips to keep you safe in our travel guides
  • Over £250 worth of exclusive food, drink  product offers each year, straight to your inbox
  • Support and events through our local groups near you
  • One to one support through our Member2Member scheme, ideal for parents or newly diagnosed
  • Our flagship magazine Live Well Gluten Free keeping you up to date on all things gluten free
  • And much more!

What are the symptoms in babies?

In babies, symptoms may develop after weaning onto cereals that contain gluten.

Symptoms in babies include:

  • bloated tummy
  • irritability
  • diarrhoea and other gut symptoms
  • faltering growth or a change in growth pattern

Find out more about coeliac disease in children here or you can call our helpline and speak to one of our dietitians.

I have coeliac disease, when should I wean my baby?

Babies who have an increased risk of coeliac disease should be weaned in the same way as any other child. 

Find out more about feeding your baby here.

What are the symptoms of coeliac disease?

The symptoms of coeliac disease vary from person to person and can range from very mild to severe. Common symptoms include:

  • frequent bouts of diarrhoea or loose stools
  • nausea, feeling sick and vomiting
  • stomach pain and cramping
  • lots of gas and bloating
  • feeling tired all the time, ongoing fatigue
  • anaemia (you would be told if you’re anaemic following a blood test)
  • weight loss (although not in all cases)
  • regular mouth ulcers
  • constipation or hard stools
  • skin rash (dermatitis herpetiformis, the skin manifestation of coeliac disease).

If you have any of these symptoms, you can take our online assessment which is a short questionnaire on symptoms and other risk factors for coeliac disease.

Can you recommend a coeliac disease specialist consultant for me to see?

Although we cannot recommend a specific consultant / Gastroenterologist, we suggest visiting www.specialistinfo.com or NHS choices for more information on consultants by speciality and geographic area.

What are my rights and obligations as a Member?

You can download our full Memorandum and Articles of Association which will explain all the rules underpinning the Charity.

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