Questions related to: What does this mean for Scotland/Wales/Northern Ireland?

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Are you funding any research into a vaccine (or cure) for coeliac disease?

Coeliac UK funded the initial project of Professor Bob Anderson which identified the most important gluten peptides causing problems for people with coeliac disease. This research formed the basis of further research and eventually the development of the NexVax2 vaccine.  

Unfortunately, this work was halted in 2019 as results showed that it did not provide sufficient protection to gluten exposure. Coeliac UK is committed to funding research which provides a greater understanding of the disease process to identify new targets for treatment or a cure. 

How much does Coeliac UK spend on funding research?

Since 2005 we have committed around £3.5M to research. The frequency of research calls and the amounts available for each one vary depending on donations, receipt of legacies and external grants.

I’m currently studying at University and wish to do a project on coeliac disease for my final year thesis. Are you able to help and who can I contact to discuss my ideas or ask for advice?

Our sponsored dissertation scheme may be right for you or you can share your ideas by completing the online research enquiry form.  

 

Why aren’t some manufacturers or brands listed in the Guide?

We have endeavoured to increase the number of products and manufacturers listed in this year’s Food and Drink Guide by contacting over 200 manufacturers and sourcing product information from a third party, Brandbank. By changing the way we collect the information for the Guide we are pleased to list over 20,000 products. If you can’t find a particular brand in the Guide this may be because they have not provided us with information and have not provided information to Brandbank. It might also be because the product contains gluten.

If you are unsure whether you can eat a particular product you can check the label. For more information on reading labels please visit www.coeliac.org.uk/labels.

I’m confused by the ‘very low gluten’ label. Can I eat foods labelled as this?

This covers foods containing between 21 and 100ppm gluten.

Specialist substitute products (such as breads and flour mixes) that contain a gluten reduced ingredient (gluten free wheat starch) with a gluten level above 21 and up to 100 ppm may be labelled as ‘very low gluten’. There aren’t any foods currently labelled ‘very low gluten’ in the UK.

The first law around the use of the term gluten free was published in January 2009 and introduced in January 2012. This law is based on the revised international Codex Alimentarius standard for gluten free, published in 2008.

 

What should I do if my local restaurant hasn’t heard about the law on gluten-free?

Give them more information about the law or pass them onto us and we can help. We have lots of information in our Food Industry Professionals section.

Welsh Assembly Member and Coeliac UK Governor Dai Lloyd asked the Cabinet Secretary for Health, Well-being and Sport for a statement on gluten-free prescriptions. What was the response?

Vaughan Gething AM said:

Gluten-free products are an essential part of the clinical treatment of coeliac disease. National prescribing guidance was published in 2013 to support healthcare professionals in the management of patients with coeliac disease. Coeliac UK has supported the development of the guidance including the updated version published in March 2016.

Read in more detail at:

30 June 2017

www.assembly.wales/en/bus-home/pages/plenaryitem.aspx?category=written%20question&itemid=3431&c=Written%20Question&startDt=24/05/2017&endDt=30/06/2017

13 July 2016

www.assembly.wales/en/bus-home/pages/qnr.aspx?meetingid=3617&assembly=5&c=Record%20of%20Proceedings

Can I only eat products listed in the Food and Drink Guide?

No. You do not have to limit yourself to products listed in the Food and Drink Guide.

The gluten free diet is made up of naturally gluten free foods such as fruit and vegetables, meat, fish and poultry, eggs, cream, milk, rice, potatoes, pulses and beans. We do not list every brand of these in the Food and Drink Guide but you can find a list of naturally gluten free ingredients on Page 6 & 7.

Why isn’t Coeliac UK taking legal action?

In England, health policy is localised and in the last 12 months we have taken legal action where a CCG policy presented a blanket ban on gluten free prescribing. Once the results of the consultation are known we will consider next steps. The grounds for making a legal challenge may be very restricted if the implementation of change follows the law on the required consultation approach and appropriate changes in the regulations.

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