Frequently Asked Questions Find everything you need to know about coeliac disease, the gluten free diet and the work we do.
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Is there a guideline on coeliac disease for Scotland?
The National Institute for Health and Care Excellence (NICE) published a guideline on the recognition, assessment and management of coeliac disease in children and adults in England and Wales in September 2015. The British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) in collaboration with Coeliac UK published guidelines on the diagnosis and management of coeliac disease in children in 2013. These guidelines may be applied in Scotland, as the Scottish Intercollegiate Guidelines Network (SIGN) who develop guidelines for the National Health Service (NHS) in Scotland, have not yet produced guidelines on coeliac disease.
We have further information on diagnosis on our website.
Who can take part?
Everyone is welcome to take part and please encourage your family and friends to join in. Children under the age of 16 will have to be registered by a parent or guardian.
If a product says it is gluten-free on the label, but is not listed in the Directory, can I eat it?
Yes. If a product states that it is ‘gluten-free’, it will be suitable for a gluten-free diet.
I want to do this with my partner/family/friends – can we do this?
Yes, you can either order a multi-person pack for up to 4 people for £60, including up to 4 t-shirts, 8 light-up wrist bands and more of the other items. Or, you can set up a team once you have registered via the standard or premium tickets and invite others to join you.
How do I find out where I can buy gluten-free communion wafers?
You can find a list of communion wafer suppliers here.
How do I update my Food and Drink Guide?
It is important to make sure the Food and Drink Guide is kept up to date. Products do change and many new products are added throughout the year. Our Food and Drink Information and mobile app are updated in real time however monthly updates to the Food and Drink Guide hard copy can also be found:
- on our website www.coeliac.org.uk, ‘Food & drink Updates’
- by following the link on our monthly electronic newsletter
Why aren’t Booths, Budgens, Iceland and Lidl listed in this year’s Directory?
We don’t have information on own brand products from Booths, Budgens, Iceland or Lidl. If you would like information on the gluten free products sold in these supermarkets, please contact their customer services team directly. If you are unsure whether you can eat a particular product you can check the label. For more information on reading labels please visit www.coeliac.org.uk/labels.
Booths
0800 221 8707
www.booths.co.uk
Budgens
0800 298 0758
www.budgens.co.uk
Iceland
0800 328 0800
www.iceland.co.uk
Lidl
0800 977 7766
www.lidl.co.uk
I would like to donate money for research into coeliac disease, who do I contact?
Our Fundraising Team will be able to help you with your donation - please phone 01494 796 136 to speak to one of our Team Members or email fundraising@coeliac.org.uk.
Are there any incentives for pharmacists taking part in the Community pharmacy supply of gluten-free foods scheme?
Introducing a pharmacy led supply scheme allows better stock control of gluten-free foods for pharmacists as well as providing a more flexible service to improve the patient experience.
Pharmacists and GP dispensaries are paid a service charge at six monthly intervals for each patient who accesses the service. When the scheme in Northamptonshire was introduced it was run as an Enhanced Service with funding for this element of the contract coming from Primary Care Contracting budgets.