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Frequently Asked Questions
Research proposals are screened by the Policy Research and Campaigns Team at Coeliac UK. The review and approval process depends on the amount of grant requested and whether the application was submitted to or outside of a research call. Proposals may be reviewed by external experts working in the field of coeliac disease, our Member Review Panel, our Health Advisory Council and/ or Food Standards Committee before approval by the Chief Executive (£30,000 or below) or Board of Governors (more than £30,000). For more information see our Research Strategy.
The Vegetarian Chapter contains gluten free foods that are suitable for a vegetarian diet. Some products may also be suitable for a vegan diet, please refer to the manufacturer.
Branston Pickle contains barley malt vinegar, if it is used in a food product the manufacturer must list the word ‘barley’ in the ingredients list in line with European Union wide allergen labelling law.
Barley malt vinegar is made using a fermentation process. This means that the amount of barley, and therefore gluten, in the end product is extremely small and is well below a level which is safe for people with coeliac disease.
We do not have information on the level of the barley malt extract in their own brand breakfast cereals this year. You can contact them for more information by calling their Customer Service departments Aldi 0800 042 0800, Morrisons 0345 611 6111 & Sainsbury’s 0800 636 262).
Alternative breakfast cereals are listed on our online Food and Drink Information.
This is our busiest campaigning time where Local Voluntary Support Groups around the country host events which feed into a national picture of campaigning. This translates to people holding events focused around a particular theme, as well as, amongst other activities, writing to their MPs, speaking to the media and fundraising for us. Usually Awareness Week is in May, and lasts from Monday to Sunday.
This campaign focuses on the food service sector, so those who provide food in restaurants and eateries around the country. We want to make eating out easier for people with coeliac disease, which means access to safe gluten-free options that are clearly marked on menus. We have been working with this sector and raising awareness through our Gluten-free Chef of the Year competition, to get chefs and catering college students to plan gluten-free menus. We’ve also worked with industry specialists and created education tools to work with the sector in getting gluten-free dishes onto menus.
We would like to see better availability of gluten-free food in supermarkets and on prescription. There have recently been developments in this sphere as the international standard on gluten-free food has changed. We have been campaigning to make sure that the change to the standard is a positive change for people with coeliac disease. We work with manufacturers and industry leaders, such as the British Retail Consortium, to ensure that we can find a path which works for industry leaders, as well as people with coeliac disease.
The medical profession has so far, under recognised coeliac disease. It is not routinely tested for at the moment, and we are campaigning to change this. We would like to see coeliac disease better recognised by the medical profession so that people with symptoms of the condition are picked up more quickly and diagnosis improves. By talking to healthcare professionals about coeliac disease and the problems you face, we hope to improve the situation. We are currently carrying out a Diagnosis Survey to help us with this campaign, as well as running a petition to ask the government to improve diagnosis of coeliac disease. We are also working with healthcare bodies to improve GPs’ knowledge of the condition. We have already made progress with this campaign as we saw NICE publish guidelines on the diagnosis of coeliac disease in May 2009. This was a direct result of a campaign we ran in 2006, and proves that whilst campaigning can be a slow process, it does work.
It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.
Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.
Were you to organise an event as part of one of our campaigns, we would supply you with support materials. Usually, particularly for Awareness Week, we have an information toolkit packed with activity ideas. We also have balloons and leaflets which we can send to you. Do let us know in good time when you’re holding an event as we can put it into our monthly email newsletter to help drive up your attendance numbers.