Frequently Asked Questions Find everything you need to know about coeliac disease, the gluten free diet and the work we do.

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What is osteoporosis?

Osteoporosis is a condition where the body's bones become brittle and are more likely to break. People with coeliac disease may have low bone mineral density (BMD), which is what is used to diagnose osteoporosis.

Where does the money come from to fund research?

The money comes from membership fees, donations, legacies or external grants we have applied for.

Are you funding any research into a vaccine (or cure) for coeliac disease?

Coeliac UK funded the initial project of Professor Bob Anderson which identified the most important gluten peptides causing problems for people with coeliac disease. This research formed the basis of further research and eventually the development of the NexVax2 vaccine. Work in this area is ongoing, the availability of a vaccine is still many years away whilst the essential process of testing for safety, dosage, effectiveness and possible side effects are determined. Coeliac UK has also funded research which provides a greater understanding of the disease process in coeliac disease, research which can potentially identify new targets for treatment or a cure. 

Do the new rules apply to deli counters in supermarkets?

Yes. Food businesses selling foods that are loose, i.e. not wrapped, must provide allergen information. This applies to deli counters and other environments like butchers, fishmongers and salad bars.

When I press ‘Take me there’ I’m taken out of the app.

Unfortunately iPhone apps do not fully integrate Google Maps but use their capability which means that Google Maps will open separately to provide directions. If you go back to your homepage screen and tap our app icon you will go back to the page that you left the app from.

My scanner doesn’t work in the Food and Drink Information?

The scanner needs to be held steadily over the barcode to read it. If you are using an iPhone there is a red box to help you focus.

I don’t have diarrhoea as a symptom, does that mean I don’t have coeliac disease?

Coeliac disease is known as a 'multi system' disorder' - symptoms can affect any area of the body. Symptoms differ between individuals in terms of type and severity.

How do you decide on what research to focus within Coeliac UK?

Everything we do is to support our Members and in particular the strategic aims of the Charity. The research we carry out ourselves is usually generated to determine a policy position on which we can campaign for improving the lives of people with coeliac disease.

Are there any incentives for pharmacists taking part in the Community pharmacy supply of gluten-free foods scheme?

Introducing a pharmacy led supply scheme allows better stock control of gluten-free foods for pharmacists as well as providing a more flexible service to improve the patient experience.

Pharmacists and GP dispensaries are paid a service charge at six monthly intervals for each patient who accesses the service. When the scheme in Northamptonshire was introduced it was run as an Enhanced Service with funding for this element of the contract coming from Primary Care Contracting budgets.