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Frequently Asked Questions

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How does your work influence decisions that affect people with coeliac disease?

We are often consulted on areas of concern for people with coeliac disease and DH. This includes working with the Food Standards Agency, Department of Health and National Institute of Health and Clinical Excellence (NICE).

Who decides what the campaigns are on?

We survey our Members every year to find out their key concerns.  With this, as well as our strategy on the world we would like to see for people with coeliac disease, we are well placed to design campaigns that will help us deliver the changed landscape our Members want to see.

Where are Coeliac UK’s offices based?

Coeliac UK main office: 3rd Floor Apollo Centre, Desborough Road, High Wycombe, Bucks, HP11 2QW. Tel 0333 332 2033

Scotland office: Citibase Edinburgh,1 St Colme Street, Edinburgh, EH3 6AA. Tel 0131 220 8342

Wales office: Baltic House, Mount Stuart Square, Cardiff Bay, Cardiff, CF10 5FH. Tel 01494 796 111.

Can I download the app onto my iPad, Kindle Fire and other tablets?

The app can be downloaded on to an iPad but the barcode scanner may not work.

How is the Charity funded?

The Charity depends on a variety of funding streams. Our Members pay a small fee, to contribute to the costs of the services they receive, and we rely on donations and other fundraising activities too. We work with our commercial partners by offering advertising and sponsorship opportunities and we apply for grants from trusts and government organisations such as the Food Standards Agency and the Health Foundation.

How can I give feedback about Coeliac UK?

So that we can constantly improve and update our services, we are always pleased to receive comments on the way we operate. Please use the contact us section to let us know what you think.

How can I become involved in campaigns?

Anyone can get involved in campaigning and it is easier than you think. By writing a letter to your MP or signing a petition, you could be making an essential contribution to a campaign. Have a look at our campaign pages and check out the latest action we need help with.

What is special about Coeliac UK?

Coeliac UK is the only national Charity supporting people with coeliac disease in the UK. It is also the biggest coeliac society in the world and regularly shares knowledge and advice with international colleagues. What’s more, in 2005 Coeliac UK funded the largest ever series of research projects into coeliac disease.

Can the Community pharmacy supply of gluten-free foods toolkit be used for individual GP dispensing practices?

It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.

Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.

Does Coeliac UK fund research?

Every year the Charity invests a lot of money into research. Some of that research is looking at the underlying genetic make up of people with coeliac disease while other research looks at the day to day impact on people living with the condition. We are the largest investor in research into coeliac disease in the UK. We usually advertise for applications to research grants annually in the medical press.

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