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Frequently Asked Questions

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What is special about Coeliac UK?

Coeliac UK is the only national Charity supporting people with coeliac disease in the UK. It is also the biggest coeliac society in the world and regularly shares knowledge and advice with international colleagues. What’s more, in 2005 Coeliac UK funded the largest ever series of research projects into coeliac disease.

Does Coeliac UK fund research?

Every year the Charity invests a lot of money into research. Some of that research is looking at the underlying genetic make up of people with coeliac disease while other research looks at the day to day impact on people living with the condition. We are the largest investor in research into coeliac disease in the UK. We usually advertise for applications to research grants annually in the medical press.

Do you work with the Government?

Yes, our parliamentary work helps us to influence policy and the decisions that affect people with coeliac disease. We have invested in this area to get the most for people with coeliac disease and so we have offices in Scotland and Wales.

How can I get Coeliac UK to campaign for me?

We are always on the lookout for ways that we can improve the lives of those with coeliac disease and DH. If you think there is something we could be campaigning on, get in touch with us.

How can my local NHS Trust support patients with gluten-free prescribing while meeting tighter NHS budgets?

Pharmacy supply schemes are currently running in a number of parts of the UK. These schemes have resulted in significant cost savings while continuing to support people with coeliac disease on the gluten-free diet. Read more information on these schemes.

What should I cover when seeing a patient with coeliac disease?

Information on the management of coeliac disease, including new patient appointment and follow up appointment checklists can be found on the Coeliac UK website. You can also refer patients to Coeliac UK for further information and support on the gluten-free diet and access to resources. Find out more about the benefits for your patients of joining Coeliac UK.

What are the benefits of volunteering with Coeliac UK?

Volunteering with Coeliac UK can offer a range of benefits. It can be a great chance to:

  • meet new people
  • build confidence
  • try something new
  • make a difference
  • have fun!

Throughout your role you will be supported by the staff at Coeliac UK. We will provide you with information, advice and updates throughout your time as a volunteer.

How can I update my contact details?

You can amend your personal contact details, email address and login details in your Scrapbook. You need to be logged in to do this, so if you are not already logged in you'll need to have your username and password at hand. Alternatively you can email us or phone us on 0333 332 2033.

Is coeliac disease the same as an allergy to wheat?

Coeliac disease is not the same as an allergy to wheat. Coeliac disease is a well defined, serious illness where the body’s immune system attacks itself when gluten is eaten. This causes damage to the lining of the gut and means that the body cannot properly absorb nutrients from food. Coeliac disease is not a food allergy or intolerance, it is an autoimmune disease. Wheat allergy is a reaction to proteins found in wheat, triggered by the immune system and usually occurs within seconds or minutes of eating.

Can the Community pharmacy supply of gluten-free foods toolkit be used for individual GP dispensing practices?

It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.

Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.

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