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Frequently Asked Questions

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How do I diagnose coeliac disease?

There is a National Institute of Health and Clinical Excellence (NICE) guideline on recognition, assessment and management of coeliac disease for healthcare professionals in Primary and Secondary care. The guideline outlines the symptoms and patients at risk of coeliac disease and also the appropriate blood tests and the exact process to be completed in order to identify patients with coeliac disease.

The British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) in collaboration with Coeliac UK published guidelines on the diagnosis of coeliac disease in children in 2013. These guidelines suggest that in some cases in children with symptoms and whose blood tests show a high level of antibodies and who have the genes present for coeliac disease, a biopsy may not be needed to confirm diagnosis. We have further information on the diagnosis of coeliac disease on our website.

What advice should be given about including oats in the diet?

Gluten-free oats may be introduced to the diet at any stage following diagnosis. However, a small percentage of people with coeliac disease are sensitive to gluten-free oats and if a patient has ongoing symptoms whilst including gluten-free oats in the diet, their use should be reviewed by a health professional. Read more about oats.

What is Coeliac UK currently campaigning for?

Coeliac UK is campaigning on a range of issues that affect those with coeliac disease. These range from issues around improving diagnosis rates through to getting more gluten-free substitute food into stores.

We are campaigning on the issues most important to our Members and our community. These issues include improving diagnosis, keeping gluten-free prescriptions within the NHS, creating more choice for people with coeliac disease through better provision in shops and restaurants.

How long does a campaign run for?

We run campaigns for as long as they are needed to achieve their goals.

How does your work influence decisions that affect people with coeliac disease?

We are often consulted on areas of concern for people with coeliac disease and DH. This includes working with the Food Standards Agency, Department of Health and National Institute of Health and Clinical Excellence (NICE).

Who decides what the campaigns are on?

We survey our Members every year to find out their key concerns.  With this, as well as our strategy on the world we would like to see for people with coeliac disease, we are well placed to design campaigns that will help us deliver the changed landscape our Members want to see.

Can I download the app onto my iPad, Kindle Fire and other tablets?

The app can be downloaded on to an iPad but the barcode scanner may not work.

How is the Charity funded?

The Charity depends on a variety of funding streams. Our Members pay a small fee, to contribute to the costs of the services they receive, and we rely on donations and other fundraising activities too. We work with our commercial partners by offering advertising and sponsorship opportunities and we apply for grants from trusts and government organisations such as the Food Standards Agency and the Health Foundation.

How can I give feedback about Coeliac UK?

So that we can constantly improve and update our services, we are always pleased to receive comments on the way we operate. Please use the contact us section to let us know what you think.

Can the Community pharmacy supply of gluten-free foods toolkit be used for individual GP dispensing practices?

It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.

Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.

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