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Frequently Asked Questions

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Can you ‘grow out’ of coeliac disease?

Coeliac disease is a lifelong condition and the gluten-free diet is the only treatment for it. If gluten is introduced back into the diet at a later date, the immune system will react and the gut lining will become damaged again.

My scanner doesn’t work in the Food and Drink Information?

The scanner needs to be held steadily over the barcode to read it. If you are using an iPhone there is a red box to help you focus.

Can only children get coeliac disease?

Coeliac disease can develop and be diagnosed at any age. It may develop after weaning onto cereals that contain gluten, in old age or any time in between. Coeliac disease is most frequently diagnosed in people aged 40-60 years old. Delayed diagnosis is common, Coeliac UK research shows the average time it takes to be diagnosed is 13 years.

I don’t have diarrhoea as a symptom, does that mean I don’t have coeliac disease?

Coeliac disease is known as a 'multi system' disorder' - symptoms can affect any area of the body. Symptoms differ between individuals in terms of type and severity.

Can anyone help with research?

All Members have the opportunity to be registered with Coeliac UK for research purposes. However some research projects are not open to all as they can have specific inclusion criteria eg age, length of diagnosis, gender, living location etc. which can result in some people not being suitable. Non Members with coeliac disease may also respond to recruitment for research advertised on our website.

Are you funding any research into a vaccine (or cure) for coeliac disease?

Coeliac UK funded the initial project of Professor Bob Anderson which identified the most important gluten peptides causing problems for people with coeliac disease. This research formed the basis of further research and eventually the development of the NexVax2 vaccine, which is now being used in early stage clinical trials. The availability of a vaccine is still many years away whilst the essential process of testing for safety, dosage, effectiveness and possible side effects are determined.

Who can attend the Coeliac UK Research Conference?

The Research Conference is open to Healthcare Professionals and researchers working in coeliac disease. It allows them to share knowledge and experiences which can support them in their work. All Coeliac UK Members can access Powerpoint presentations (where permission from the speaker has been given) and videos for each of the talks which can be accessed via Membership login. 

How do you decide on what research to focus within Coeliac UK?

Everything we do is to support our Members and in particular the strategic aims of the Charity. The research we carry out ourselves is usually generated to determine a policy position on which we can campaign for improving the lives of people with coeliac disease.

Can the Community pharmacy supply of gluten-free foods toolkit be used for individual GP dispensing practices?

It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.

Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.

I’m currently studying at University and wish to do a project on coeliac disease for my final year thesis. Who can I contact to discuss my ideas or ask for advice?

Our Research Manager will be able to help you. Please email research@coeliac.org.uk.

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