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Frequently Asked Questions

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Do you conduct research at Coeliac UK or do you only fund research?

Most of our research is carried out externally however we do run a number of projects ourselves, some with the help of our Members and Research Volunteers.

Surely a breadcrumb wouldn’t hurt someone with coeliac disease?

Even very small amounts of gluten can be damaging to people with coeliac disease. Therefore, taking sensible steps to avoid cross contamination with gluten is important.

Do the new rules apply to deli counters in supermarkets?

Yes. Food businesses selling foods that are loose, i.e. not wrapped, must provide allergen information. This applies to deli counters and other environments like butchers, fishmongers and salad bars.

Does coeliac disease only affect Europeans?

Coeliac disease affects all ethnic groups and is common in Europe and North America, as well as in southern Asia, the Middle East, North Africa and South America.

Is there any advice for people with coeliac disease who are pregnant?

Pregnancy holds no greater risks for women diagnosed with coeliac disease than those without, but it is important you follow a strict gluten-free diet and make sure you get a good intake of calcium and iron.

When I press ‘Take me there’ I’m taken out of the app.

Unfortunately iPhone apps do not fully integrate Google Maps but use their capability which means that Google Maps will open separately to provide directions. If you go back to your homepage screen and tap our app icon you will go back to the page that you left the app from.

Can you ‘grow out’ of coeliac disease?

Coeliac disease is a lifelong condition and the gluten-free diet is the only treatment for it. If gluten is introduced back into the diet at a later date, the immune system will react and the gut lining will become damaged again.

My scanner doesn’t work in the Food and Drink Directory?

The scanner needs to be held steadily over the barcode to read it. If you are using an iPhone there is a red box to help you focus.

Can the Community pharmacy supply of gluten-free foods toolkit be used for individual GP dispensing practices?

It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.

Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.

Can only children get coeliac disease?

Coeliac disease can develop and be diagnosed at any age. It may develop after weaning onto cereals that contain gluten, in old age or any time in between. Coeliac disease is most frequently diagnosed in people aged 40-60 years old. Delayed diagnosis is common, Coeliac UK research shows the average time it takes to be diagnosed is 13 years.

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