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Frequently Asked Questions

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My scanner doesn’t work in the Food and Drink Information?

The scanner needs to be held steadily over the barcode to read it. If you are using an iPhone there is a red box to help you focus.

Can only children get coeliac disease?

Coeliac disease can develop and be diagnosed at any age. It may develop after weaning onto cereals that contain gluten, in old age or any time in between. Coeliac disease is most frequently diagnosed in people aged 40-60 years old. Delayed diagnosis is common, Coeliac UK research shows the average time it takes to be diagnosed is 13 years.

I don’t have diarrhoea as a symptom, does that mean I don’t have coeliac disease?

Coeliac disease is known as a 'multi system' disorder' - symptoms can affect any area of the body. Symptoms differ between individuals in terms of type and severity.

Can anyone help with research?

All Members have the opportunity to be registered with Coeliac UK for research purposes. However some research projects are not open to all as they can have specific inclusion criteria eg age, length of diagnosis, gender, living location etc. which can result in some people not being suitable. Non Members with coeliac disease may also respond to recruitment for research advertised on our website.

Are you funding any research into a vaccine (or cure) for coeliac disease?

Coeliac UK funded the initial project of Professor Bob Anderson which identified the most important gluten peptides causing problems for people with coeliac disease. This research formed the basis of further research and eventually the development of the NexVax2 vaccine, which is now being used in early stage clinical trials. The availability of a vaccine is still many years away whilst the essential process of testing for safety, dosage, effectiveness and possible side effects are determined.

Who can attend the Coeliac UK Research Conference?

The Research Conference is open to Healthcare Professionals and researchers working in coeliac disease. It allows them to share knowledge and experiences which can support them in their work. All Coeliac UK Members can access Powerpoint presentations (where permission from the speaker has been given) and videos for each of the talks which can be accessed via Membership login. 

How do you decide on what research to focus within Coeliac UK?

Everything we do is to support our Members and in particular the strategic aims of the Charity. The research we carry out ourselves is usually generated to determine a policy position on which we can campaign for improving the lives of people with coeliac disease.

I’m currently studying at University and wish to do a project on coeliac disease for my final year thesis. Who can I contact to discuss my ideas or ask for advice?

Our Research Manager will be able to help you. Please email research@coeliac.org.uk.

Are there any incentives for pharmacists taking part in the Community pharmacy supply of gluten-free foods scheme?

Introducing a pharmacy led supply scheme allows better stock control of gluten-free foods for pharmacists as well as providing a more flexible service to improve the patient experience.

Pharmacists and GP dispensaries are paid a service charge at six monthly intervals for each patient who accesses the service. When the scheme in Northamptonshire was introduced it was run as an Enhanced Service with funding for this element of the contract coming from Primary Care Contracting budgets.

How do you decide on which external research projects should be funded?

Research proposals are screened by the Policy Research and Campaigns Team at Coeliac UK. The review and approval process depends on the amount of grant requested and whether the application was submitted to or outside of a research call. Proposals may be reviewed by external experts working in the field of coeliac disease, our Member Review Panel, our Health Advisory Council and/ or Food Standards Committee before approval by the Chief Executive (£30,000 or below) or Board of Governors (more than £30,000). For more information see our Research Strategy.

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