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Frequently Asked Questions

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If I have registered as being interested in research, must I participate?

No, participation is always voluntary. After you have received information about a research project you are not obliged to participate and if you do consider becoming involved, you also have the right to change your mind at any time. 

Where does the money come from to fund research?

The money comes from Membership fees, donations, legacies or external grants we have applied for.

How much does Coeliac UK spend on funding research?

We aim to spend 5% of our income on research. The amount can increase in line with donations, receipt of legacies and external grants.

I would like to donate money for research into coeliac disease, who do I contact?

Our Fundraising Team will be able to help you. Please phone 01494 796127 or email fundraising@coeliac.org.uk

Do you conduct research at Coeliac UK or do you only fund research?

Most of our research is carried out externally however we do run a number of projects ourselves, some with the help of our Members and Research Volunteers.

Surely a breadcrumb wouldn’t hurt someone with coeliac disease?

Even very small amounts of gluten can be damaging to people with coeliac disease. Therefore, taking sensible steps to avoid cross contamination with gluten is important.

Do the new rules apply to deli counters in supermarkets?

Yes. Food businesses selling foods that are loose, i.e. not wrapped, must provide allergen information. This applies to deli counters and other environments like butchers, fishmongers and salad bars.

Does coeliac disease only affect Europeans?

Coeliac disease affects all ethnic groups and is common in Europe and North America, as well as in southern Asia, the Middle East, North Africa and South America.

Can the Community pharmacy supply of gluten-free foods toolkit be used for individual GP dispensing practices?

It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.

Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.

Is there any advice for people with coeliac disease who are pregnant?

Pregnancy holds no greater risks for women diagnosed with coeliac disease than those without, but it is important you follow a strict gluten-free diet and make sure you get a good intake of calcium and iron.

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