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Frequently Asked Questions
There is a range of ways to get involved, and there is something for everyone. Whether you tell your story through being a case study, write to your MP, collect signatures for a petition or host an event, everything helps to raise awareness about coeliac disease.
It is thought that one in 100 people in the UK has coeliac disease but only 24% of these people are diagnosed. We estimate there are nearly half a million people who have coeliac disease but aren’t yet diagnosed.
Yes. Many of our volunteers work full time. We aim to provide flexible roles which can be carried out around your other commitments, be they work, family or leisure.
The first test for coeliac disease is a blood test done by your GP that looks for antibodies that the body makes in response to eating gluten. If the blood test is positive, your GP will then refer you to a hospital specialist (gastroenterologist) for an endoscopy with biopsy.
You can also take Coeliac UK’s online assessment to find out if your symptoms may be caused by coeliac disease.
Osteoporosis is a condition where the body's bones become brittle and are more likely to break.
At the moment there is no cure and the treatment is a life long gluten-free diet. There is, however, research underway to develop a vaccine.
Coeliac disease does run in families but not in a predictable way. Around one in ten close relatives of people with coeliac disease (for example, father, mother, son, daughter) will be at risk of coeliac disease, so if you have a relation with coeliac disease you should be aware of the symptoms.
The blood tests look for antibodies that your body produces when you eat gluten so if you are not eating gluten you will not be producing antibodies and so the result will come back negative. It is recommended that you eat some gluten in more than one meal every day for at least six weeks before testing.
It would be difficult to set up a pharmacy led supply scheme as an independent. If you are interested in setting up a pharmacy led supply scheme we would recommend speaking with your local Clinical Commissioning Group and other GP surgeries in your area to consider the potential for collaboration.
Items supplied on prescription are reimbursed through the national Prescription Pricing Department (PPD). The PPD receives all prescriptions dispensed and reimburses individual pharmacies and GP dispensaries accordingly.The cost of each prescription is taken from the appropriate GP surgery prescribing budget. In Northamptonshire, when the pharmacy led supply scheme was introduced in 2006, the funds came from the existing Primary Care Trust (PCT) prescribing budget.
In babies, symptoms may develop after weaning onto cereals that contain gluten. Symptoms in babies include:
- muscle wasting in the arms and legs
- bloated tummy
- failure to gain weight or lose weight after previously growing well.