The consultation is proposing to change secondary legislation only. The options are for gluten free products to be “blacklisted” ie GPs would be banned from prescribing them on the NHS, or to add differing ranges of products to the prescribing list, or to maintain the list.

The consultation does not propose minimum levels of access, and does not propose changes to the Health and Social Care Act 2012. Therefore, it must be assumed that Clinical Commissioning Groups (CCGs) will continue to have the ability to make local policies in this area.

This means that where prescribing has been ended, that this is likely to continue, and that CCGs will continue to make proposals to adjust policies in this area, if they feel it necessary. The framework being proposed facilitates the continuation of local policy making by CCGs. However, if the outcome of the consultation is to allow the continuation of prescribing we will use the Department of Health response to go back to the CCGs and point out that the Government have clearly accepted that it is legitimate to prescribe gluten free products.

Research proposals are screened by our Policy, Research and Campaigns team for their completeness.

Our Research Awards Panel comprises of experts who make recommendations for funding, either autonomously or based on the feedback of experts external to the panel and the lay Member Review Panel. The selection of proposals for funding by our Research Awards Panel, is based strictly on peer review evaluation of scientific excellence and against the criteria of our Research Strategy.

Research must underpin our top ten research priorities 

We have been talking to manufacturers for many years about the possibility of changes in access to prescriptions and we would welcome better access in retail to all gluten free foods for people with coeliac disease. In the end individual companies will need to make the business decisions on where best to supply their products.

Increase in product recalls reflects increase in product availability in retail and most product alerts relate to mislabelling rather than problems with contamination. Both prescribed and non-prescribed products have to meet regulatory standards and in fact most companies supplying to the NHS also provide retail products. Contamination risks need to be properly controlled regardless of supply chain.

We understand how difficult it might be to manage without prescriptions. Gluten free staple foods like bread are key products in managing the diet from both a nutritional and practical standpoint so more care will be needed.

We are trying to make it easier by providing advice for managing a gluten free diet on a budget.

Most of our research is carried out externally however we do run a number of projects ourselves, some with the help of our members and volunteers.

If there is a planned poster presentation then a call for abstracts associated with the Research Conference will be advertised on our website with instructions on how to make a submission.

Members of Coeliac UK can opt in to be contacted about research and opportunities to get involved in research will be advertised on our website here: www.coeliac.org.uk/research/our-approach/recruiting-for-research

Members and non members are welcome to apply for research, but projects will have different inclusion and exclusion criteria such as: age, gender, location, length of diagnosis, etc., which may mean that some people are not suitable for particular projects. 

Our Fundraising Team will be able to help you with your donation - please phone 01494 796 136 to speak to one of our Team Members or email fundraising@coeliac.org.uk.